Confidentiality, privacy, and respect: experiences of female sex workers participating in HIV research in Andhra Pradesh, India.

Confidentiality, privacy, and respect: experiences of female sex workers participating in HIV research in Andhra Pradesh, India.
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DOI:
10.1525/jer.2014.9.1.19
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发表时间:
2014-02
期刊:
Journal of empirical research on human research ethics : JERHRE
影响因子:
--
通讯作者:
Fisher CB
Fisher CB
中科院分区:
其他
文献类型:
--
作者:
Reed E;Khoshnood K;Blankenship KM;Fisher CB

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来自印度安得拉邦参与艾滋病毒研究的女性性工作者 (FSW) 接受了采访,以考察参与者对研究伦理的看法。内容分析表明,同意过程、工作人员性别和举止、研究环境、调查内容、参与研究的时间要求以及感知的 FSW 社区对研究的支持等方面是影响 FSW 是否认为自己的机密和隐私得到维护以及他们是否认为研究受到尊重的关键因素。研究结果表明,与社区组织的合作以及对参与者在艾滋病毒预防研究中的经历的调查可以提供关键信息,以便最好地为研究伦理协议提供信息,这在针对 FSW 等高度污名化人群的研究中尤其重要。
Female sex workers (FSW) from Andhra Pradesh, India who had participated in HIV research were interviewed to examine participant perspectives on research ethics. Content analysis indicated that aspects of the consent process, staff gender and demeanor, study environment, survey content, time requirements for study participation, and perceived FSW community support for research were key factors influencing whether FSW perceived their confidentiality and privacy had been maintained, and whether they felt the study was conducted respectfully. Findings suggest that partnership with community-based organizations and investigation of participant’s experiences in HIV prevention research can provide critical information to best inform research ethics protocols, a particular priority among research studies with highly stigmatized populations, such as FSW.
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