The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention.

The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention.
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DOI:
10.1007/s10803-017-3350-7
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发表时间:
2018-04
影响因子:
3.9
通讯作者:
PACT Consortium
PACT Consortium
中科院分区:
心理学3区
文献类型:
--
作者:
Leadbitter K;Aldred C;McConachie H;Le Couteur A;Kapadia D;Charman T;Macdonald W;Salomone E;Emsley R;Green J;PACT Consortium

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缺乏反映自闭症谱系障碍儿童父母干预重点的措施,以及评估干预措施对家庭体验和生活质量的影响的措施。自闭症家庭体验问卷(AFEQ)是通过焦点小组和与父母的在线咨询而制定的,反映了父母的优先事项。然后对参加学龄前自闭症沟通试验及其6年跟踪研究的儿童的父母进行了测试。AFEQ在儿童适应功能、父母心理健康和父母幸福感方面表现出良好的趋同效度。对自闭症儿童父母干预的反应是敏感的,在治疗终点表现出治疗效果,并在六年随访中增加。本文的在线版本(10.1007/s10803-017-3350-7)载有补充材料,可供授权用户使用。
There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and reflected parental priorities. It was then administered to the parents of children enrolled in the Pre-school Autism Communication Trial and its 6-year follow-up study. The AFEQ showed good convergent validity with well-established measures of child adaptive functioning, parental mental health and parental wellbeing. It was sensitive to change in response to a parent-mediated intervention for young children with autism, showing treatment effect at treatment endpoint which increased at six-year follow-up. The online version of this article 10.1007/s10803-017-3350-7) contains supplementary material, which is available to authorized users.
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