Perspectives on Kidney Disease Education and Recommendations for Improvement Among Latinx Patients Receiving Emergency-Only Hemodialysis.
Perspectives on Kidney Disease Education and Recommendations for Improvement Among Latinx Patients Receiving Emergency-Only Hemodialysis.
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DOI：
10.1001/jamanetworkopen.2021.24658
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发表时间：
2021-09-01
影响因子：
13.8
通讯作者：
Jacobs EA
中科院分区：
文献类型：
--
作者：
Novick TK;Diaz S;Barrios F;Cubas D;Choudhary K;Nader P;ElKhoury R;Cervantes L;Jacobs EA
接受紧急血液透析的拉丁裔个体对他们接受的肾脏疾病教育有什么看法，这些个体对如何改善拉丁裔人群的教育和推广提供了什么建议？在这项定性研究中，包括15名接受紧急血液透析的Latinx患者，参与者直到开始透析之前或之后不久才意识到他们的肾脏疾病，他们接受的教育质量差，没有文化上的针对性。确定了肾脏疾病教育和外展的潜在改进。这些研究结果表明，拉丁裔人口可能会接受不合格的教育，他们的肾脏疾病和教育和社区外展工作拉丁裔人口可以得到改善。本定性研究探讨了在接受紧急血液透析的Latinx患者中肾脏疾病教育的观点和可能的改进。在大多数州，患有肾衰竭的无证拉丁移民在紧急护理环境中接受透析。拉丁裔移民接受了多少肾脏疾病教育以及如何改善拉丁裔人口中的肾脏疾病教育和外展尚不清楚。了解需要但无法获得定期门诊透析的拉丁裔个体的肾脏疾病教育差距。这项定性研究使用了2020年3月至2021年1月在德克萨斯州医院系统进行的半结构化访谈，其中15名患者在首次被诊断为肾衰竭时接受了仅紧急透析。收集了人口统计信息，并进行了专题分析，使用不断比较的方法对访谈后，他们被录音，翻译和逐字转录。数据分析于二零二零年四月至二零二一年二月进行。半结构化访谈的次主题和主题。所有15名受访者（9名男性[60%];平均[SD]年龄，51 [17]岁）被确定为西班牙裔，11名（73%）出生在墨西哥，没有人报告在开始透析前6个月以上了解他们的肾脏疾病。确定的主题是（1）缺乏肾脏疾病意识，（2）提供的教育不完整且质量差，（3）缺乏文化上一致的沟通和护理，（4）接受仅紧急透析的Latinx患者希望在其教育中的元素，（5）患者激活和应对的促进者，以及（6）Latinx患者改善社区外展的建议。接受紧急透析的拉丁裔成年人通常在开始透析之前或之后不久才意识到他们的肾脏疾病，他们接受的教育质量很差，而且往往没有文化上的针对性。与会者就如何改善拉丁裔社区的教育和外联工作提出了可行的建议。
What are the perspectives of Latinx individuals receiving emergency-only hemodialysis on the kidney disease education they received, and what recommendations do these individuals offer on how to improve education and outreach among Latinx populations? In this qualitative study including 15 Latinx patients who received emergency-only hemodialysis, participants were unaware of their kidney disease until shortly before or after they started dialysis, and the education they received was poor quality and not culturally tailored. Potential improvements in kidney disease education and outreach were identified. These findings suggest that Latinx populations may receive substandard education about their kidney disease and that education and community outreach efforts for Latinx populations could be improved. This qualitative study examines perspectives on and possible improvements for kidney disease education among Latinx patients receiving emergency-only hemodialysis. In most states, undocumented Latinx immigrants with kidney failure receive dialysis in acute care settings on an emergency-only basis. How much kidney disease education Latinx immigrants receive and how to improve kidney disease education and outreach among Latinx populations are unknown. To understand the kidney disease educational gaps of Latinx individuals who need but lack access to scheduled outpatient dialysis. This qualitative study used semistructured interviews in a Texas hospital system from March 2020 to January 2021 with 15 individuals who received emergency-only dialysis when they were first diagnosed with kidney failure. Demographic information was collected, and a thematic analysis was performed using the constant comparative method on interviews after they were audio-recorded, translated, and transcribed verbatim. Data analysis was performed from April 2020 to February 2021. Subthemes and themes from semistructured interviews. All 15 persons interviewed (9 male individuals [60%]; mean [SD] age, 51 [17] years) identified as Hispanic, 11 (73%) were born in Mexico, and none reported knowing about their kidney disease more than 6 months before starting dialysis. The themes identified were (1) lack of kidney disease awareness, (2) education provided was incomplete and poor quality, (3) lack of culturally concordant communication and care, (4) elements that Latinx patients receiving emergency-only dialysis want in their education, (5) facilitators of patient activation and coping, and (6) Latinx patient recommendations to improve community outreach. Latinx adults receiving emergency-only dialysis are usually unaware of their kidney disease until shortly before or after they start dialysis, and the education they receive is poor quality and often not culturally tailored. Participants made feasible recommendations on how to improve education and outreach among Latinx communities.
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DOI：
10.2215/cjn.10260916
发表时间：
2017-05-01
影响因子：
9.8
作者：
Cervantes, Lilia;Jones, Jacqueline;Fischer, Stacy
通讯作者：
Fischer, Stacy
DOI：
10.2215/cjn.03680316
发表时间：
2017-02-01
影响因子：
9.8
作者：
Raghavan, Rajeev
通讯作者：
Raghavan, Rajeev
影响因子：
13.2
作者：
Nickolas, TL;Frisch, GD;Radhakrishnan, J
通讯作者：
Radhakrishnan, J
影响因子：
2.3
作者：
Katz JN;Lyons N;Wolff LS;Silverman J;Emrani P;Holt HL;Corbett KL;Escalante A;Losina E
通讯作者：
Losina E
影响因子：
39
作者：
Cervantes, Lilia;Fischer, Stacy;Ortega, Debora
通讯作者：
Ortega, Debora