Friendsourcing the unmet needs of people with dementia

Friendsourcing the unmet needs of people with dementia
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友谊采购痴呆症患者未满足的需求

DOI:
10.1145/2596695.2596716
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发表时间:
2014
影响因子:
6.3
通讯作者:
Tiago Guerreiro
Tiago Guerreiro
中科院分区:
医学1区
文献类型:
--
作者:
J. Martins;J. Carilho;O. Schnell;Carlos Duarte;Francisco M. Couto;L. Carriço;Tiago Guerreiro

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与痴呆症相关的认知能力衰退严重影响一个人及其周围生态系统的生活质量。首先,患有痴呆症(PwD)的人越来越忘记他们生活中的事件,导致抑郁,孤立和更快的认知恶化。其次,他们的照顾者,除了在这种情况下有一个亲近的人所带来的情感负担外,也可能被维持PwD平衡和体面生活方式的责任和义务所淹没。我们的方法试图通过提供以两种方式捕获的假体记忆来解决这个问题:1)自动捕获来自PwD的智能手机的数据,并使用从网络自动检索的数据来丰富它,2)用于验证和个性化PwD生活中的相关事件的私人社交网络组(friendsourcing)。通过在有限但仍然充满的一组值得信赖的人之间分担负载,我们的目标是保持可行的流程,并保持更多的人参与PwD。总的来说,最终目标是为PwD提供最新的和个人相关的回忆,安全和认知辅助工具。
The decay of cognitive abilities associated with dementia severely impacts the quality of life of a person and his surrounding ecosystem. First, people with dementia (PwD) increasingly forget the events in their lives leading to depression, isolation and faster cognitive deterioration. Second, their caregivers, besides the emotional burden that having someone close in such a condition carries, are also likely to be overwhelmed with responsibilities and duties in maintaining the PwD with a balanced and decent lifestyle. Our approach tries to address this by providing a prosthetic memory captured in two ways: 1) automatically captures data from the PwD's smartphone and enriches it with automatically retrieved data from the web and, 2) a private social network group (friendsourcing) used to validate and personalize the relevant events in the PwD's life. By sharing the load among a limited but still populated set of trustworthy people we aim to maintain the caregiving process feasible and maintain more people engaged with the PwD. Overall, the ultimate goal is to provide reminiscence, safety and cognitive aids for the PwD that are up-to-date and personally relevant.
阿尔茨海默氏病的认知刺激以及认知和功能下降:卡什县痴呆进展研究。
DOI: 10.1093/geronb/gbr023
发表时间: 2011
期刊: The journals of gerontology. Series B, Psychological sciences and social sciences
影响因子: --
作者:
Treiber,KatherineA;Carlson,MichelleC;Corcoran,Chris;Norton,MariaC;Breitner,JohnCS;Piercy,KathleenW;Deberard,MichaelScott;Stein,David;Foley,Beth;Welsh-Bohmer,KathleenA;Frye,Amber;Lyketsos,ConstantineG;Tschanz,JoannT
通讯作者: Tschanz,JoannT