EXPRESS: Intimacy, Contraception, and Pregnancy Prevention in Patients with Pulmonary Arterial Hypertension: Are We Counseling Our Patients?

EXPRESS: Intimacy, Contraception, and Pregnancy Prevention in Patients with Pulmonary Arterial Hypertension: Are We Counseling Our Patients?
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DOI:
10.1177/2045894018785259
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发表时间:
2018-06-12
影响因子:
2.6
通讯作者:
Traiger G
Traiger G
中科院分区:
医学4区
文献类型:
--
作者:
Hill W;Holy R;Traiger G

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肺动脉高压(PAH)是一种严重的、改变生命的疾病。被诊断的患者通常具有生育能力。考虑到妊娠期间与这种疾病相关的风险以及用于治疗这种疾病的药物对胎儿的风险,应强烈建议患者不要怀孕。尽管如此,患者仍然怀孕,导致护理提供者是否定期向患者及其伴侣提供有关怀孕风险,避孕方法和亲密关系问题的咨询。我们对肺动脉高压专科医生和专职医疗保健人员进行了一项调查,了解他们与亲密关系、避孕和预防怀孕咨询相关的实践模式。大多数受访者表示,他们在不同程度上就这些问题提供咨询,但我们的调查指出了几个可以改进的领域。对所有受访者来说,咨询的最大障碍是缺乏时间。调查答复者报告说,在他们的做法中,很大一部分怀孕是故意的,或者是由于不遵守避孕规定。我们回顾了具体的实用方法,启动生殖健康咨询以及如何将PAH护理的这一重要方面纳入常规实践程序和文件。应制定关于避免妊娠和PAH的方案,并将其作为标准程序。
Pulmonary arterial hypertension (PAH) is a serious, life-altering condition. Patients who are diagnosed are often of childbearing potential. Given the well-documented risks associated with this condition during pregnancy, as well as risks to the fetus from medications used to treat this disorder, patients should be strongly advised against pregnancy. Despite this, patients still become pregnant, leading to the question of whether care providers are counseling patients and their partners about the risks of pregnancy, methods of contraception, and issues of intimacy on a regular basis. We have conducted a survey of pulmonary hypertension specialist physicians and allied healthcare professionals on their practice patterns related to counseling on intimacy, contraception, and pregnancy prevention. Most respondents indicated they are counseling on these issues to varying degrees, but our survey pointed to several areas where improvements can be made. The most significant barrier to counseling for all respondents was lack of time. Survey respondents reported that a large percentage of the pregnancies seen in their practices were either intentional or due to contraceptive non-compliance. We review specific practical approaches to initiate reproductive health counseling as well as ways to integrate this important aspect of PAH care into regular practice routines and documentation. Protocols regarding pregnancy avoidance and PAH should be developed and become standard procedure.
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