Palliative Care in Movement Disorders: an Evolving Field.

Palliative Care in Movement Disorders: an Evolving Field.
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DOI:
10.1007/s11910-021-01091-5
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发表时间:
2021-01-28
影响因子:
5.6
通讯作者:
Kluger BM
Kluger BM
中科院分区:
医学2区
文献类型:
--
作者:
Macchi ZA;Tarolli CG;Kluger BM

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这篇综述总结了运动障碍姑息治疗 (PC) 的证据现状,描述了 PC 在临床实践中的应用,并提出了未来的研究方向。从诊断到临终,PC 需求在运动障碍患者及其家人中很常见,并有助于提高生活质量。早期预先护理计划受到患者的青睐,影响结果并由 PC 框架推动。对非运动症状、社会心理需求和精神/存在困扰的系统评估可能会解决当前护理模式的差距。可以利用多种补充的和新兴的 PC 模型来满足该人群的需求。 PC 方法可以识别并改善以患者和护理人员为中心的重要结果。作为 PC 的一种相对较新的应用,需要进行研究以适应、开发和实施方法来满足该人群的独特需求。
This review summarizes the current state of evidence for palliative care (PC) in movement disorders, describes the application of PC to clinical practice, and suggests future research directions. PC needs are common in persons living with movement disorders and their families from the time of diagnosis through end-of-life and contribute to quality of life. Early advance care planning is preferred by patients, impacts outcomes and is promoted by PC frameworks. Systematic assessment of non-motor symptoms, psychosocial needs and spiritual/existential distress may address gaps in current models of care. Several complementary and emerging models of PC may be utilized to meet the needs of this population. A PC approach may identify and improve important patient and caregiver-centered outcomes. As a relatively new application of PC, there is a need for research to adapt, develop and implement approaches to meet the unique needs of this population.
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