The self-management balancing act of spousal care partners in the case of Parkinson's disease.
The self-management balancing act of spousal care partners in the case of Parkinson's disease.
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DOI：
10.1080/09638288.2017.1413427
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发表时间：
2019-04
影响因子：
2.2
通讯作者：
Tickle-Degnen L
中科院分区：
文献类型：
--
作者：
Berger S;Chen T;Eldridge J;Thomas CA;Habermann B;Tickle-Degnen L
与慢性病患者一起生活和照顾他们可能会导致护理伙伴的活动和社会参与受到限制。过去的研究强调了护理伙伴在身体和情感上照顾自己的重要性，这样他们就可以保持健康，以支持护理对象。关于护理伙伴如何照顾自己的社会生活的信息很少。本研究旨在探讨帕金森病患者配偶照顾伙伴对社会自我管理的概念。20名帕金森病患者的配偶护理伙伴接受了三次采访。扎根理论方法为数据分析提供了信息。从数据中得出的发现集中在活动，支持和情绪的平衡上，并总结为三个主题：1）活动：照顾及其他; 2）支持自己和配偶的策略; 3）情绪影响：负担和同情。这项研究表明，护理伙伴希望保持社会参与，并提供支持的重要性，解决社会情感需求的护理伙伴的人与慢性病。指导护理伙伴照顾他们的需求范围的干预措施可能会导致更健康，积极的关系。
Living with and caring for someone with chronic illness can lead to limitations in activity and social participation for the care partner. Past research emphasizes the importance of care partners taking care of themselves physically and emotionally so they can stay healthy to support the care recipient. There is little information regarding how the care partner takes care of their own social lives. The purpose of this study was to explore the concept of social self-management from the perspective of spousal care partners of people with Parkinson’s disease. Twenty spousal care partners of people with Parkinson’s disease were interviewed three times. A grounded theory approach informed data analysis. Findings that emerged from the data focused on balance in activities, support, and emotions and were summarized into three main themes: 1) Activities: Caregiving and beyond; 2) Strategies to support self and spouse; and 3) Emotional impact: Burden and compassion. This research shows that care partners want to retain social participation and provides support for the importance of addressing the socio-emotional needs of care partners of people with a chronic disease. Interventions that guide care partners to take care of their spectrum of needs may lead to healthier, positive relationships.
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DOI：
10.1007/s00702-015-1443-z
发表时间：
2016-01
期刊：
Journal of neural transmission (Vienna, Austria : 1996)
影响因子：
--
作者：
Csoti I;Jost WH;Reichmann H
通讯作者：
Reichmann H
影响因子：
4.1
作者：
Oguh, O.;Kwasny, M.;Simuni, T.
通讯作者：
Simuni, T.
影响因子：
2.3
作者：
Martin, Summer Carnett
通讯作者：
Martin, Summer Carnett
影响因子：
3
作者：
Ory, Marcia G.;Ahn, SangNam;Lorig, Kate
通讯作者：
Lorig, Kate
影响因子：
3.5
作者：
Paggi, Michelle E.;Jopp, Daniela;Hertzog, Christopher
通讯作者：
Hertzog, Christopher