Employees' Views and Ethical, Legal, and Social Implications Assessment of Voluntary Workplace Genomic Testing.
Employees' Views and Ethical, Legal, and Social Implications Assessment of Voluntary Workplace Genomic Testing.
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DOI：
10.3389/fgene.2021.643304
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发表时间：
2021
影响因子：
3.7
通讯作者：
Lee C
中科院分区：
文献类型：
--
作者：
Sanghavi K;Feero WG;Mathews DJH;Prince AER;Price LL;Liu ET;Brothers KB;Roberts JS;Lee C
雇主已经开始提供自愿工作场所基因组测试（wGT）作为员工健康福利计划的一部分，但很少有实证研究考察了wGT的道德、法律和社会影响（ELSI）。为了更好地了解员工对wGT的看法，我们对一家大型生物医学研究机构的员工进行了调查。研究人员向调查对象提供了三种获取健康相关基因组检测的假设方案：通过(1)他们的医生；（二）工作场所；3)商业直接面向消费者（DTC）的基因检测公司。总共有594名员工（28%）回应了调查。受访者表示更倾向于在工作场所进行基因组检测（70%;95% CI 66-74%），其次是医生办公室（54%;95% CI 50-58%）和DTC检测（20%;95% CI 17-24%）。在参与wGT之前，受访者希望了解测试结果的保密性（79%），相关法律和政策的存在性（70%）以及隐私保护（64%）。在各种情况下，92%的受访者更愿意与遗传咨询师一起查看测试结果。这些初步结果表明，许多员工对在工作场所进行基因检测感兴趣，甚至更喜欢在遗传健康专业人员的支持下进行检测。需要在更多样化的雇主环境中进行确认，以概括这些发现。
Employers have begun to offer voluntary workplace genomic testing (wGT) as part of employee wellness benefit programs, but few empirical studies have examined the ethical, legal, and social implications (ELSI) of wGT. To better understand employee perspectives on wGT, employees were surveyed at a large biomedical research institution. Survey respondents were presented with three hypothetical scenarios for accessing health-related genomic testing: via (1) their doctor; (2) their workplace; and 3) a commercial direct-to-consumer (DTC) genetic testing company. Overall, 594 employees (28%) responded to the survey. Respondents indicated a preference for genomic testing in the workplace setting (70%; 95% CI 66–74%), followed by doctor’s office (54%; 95% CI 50–58%), and DTC testing (20%; 95% CI 17–24%). Prior to participating in wGT, respondents wanted to know about confidentiality of test results (79%), existence of relevant laws and policies (70%), and privacy protection (64%). Across scenarios, 92% of respondents preferred to view the test results with a genetic counselor. These preliminary results suggest that many employees are interested and even prefer genetic testing in the workplace and would prefer testing with support from genetic health professionals. Confirmation in more diverse employer settings will be needed to generalize such findings.
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影响因子：
2
作者：
McDonald WS;Wagner JK;Deverka PA;Woods LA;Peterson JF;Williams MS
通讯作者：
Williams MS
DOI：
10.2190/ns.21.1.j
发表时间：
2011-05-01
影响因子：
2.3
作者：
Brandt-Rauf, Sherry, I;Brandt-Rauf, Elka;Brandt-Rauf, Paul W.
通讯作者：
Brandt-Rauf, Paul W.
影响因子：
120.7
作者：
Lerman, C;Narod, S;Lynch, H
通讯作者：
Lynch, H
影响因子：
2.1
作者：
Hall, MA;Rich, SS
通讯作者：
Rich, SS
影响因子：
120.7
作者：
Song, Zirui;Baicker, Katherine
通讯作者：
Baicker, Katherine