Sharing a diagnosis of HPV-related head and neck cancer: the emotions, the confusion, and what patients want to know.
Sharing a diagnosis of HPV-related head and neck cancer: the emotions, the confusion, and what patients want to know.
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DOI：
10.1002/hed.23182
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发表时间：
2013-11
影响因子：
2.9
通讯作者：
Pfister, David G.
中科院分区：
文献类型：
--
作者：
Baxi, Shrujal S.;Shuman, Andrew G.;Corner, Geoffrey W.;Shuk, Elyse;Sherman, Eric J.;Elkin, Elena B.;Hay, Jennifer L.;Pfister, David G.
口咽癌越来越多地与人乳头瘤病毒（HPV）有关。关于接受这种诊断的患者的经历知之甚少。对10名HPV相关口咽癌幸存者进行了半结构化访谈。访谈记录和反复出现的主题被确定。医生是关于HPV的可靠信息来源。根据预后来确定诊断与患者产生了共鸣。关于传播、潜伏期和可传播性的不确定性影响了关于HPV的对话。尽管对流行和传播有一定的了解，但患者担心他们的伴侣的风险。患者在互联网上寻求有关HPV的信息，但不容易导航。对诊断的情绪反应仍然主要以癌症为中心，而不是以HPV为中心。针对患者的问题，制定了患者教育讲义。额外的教育资源以一致的方式解释HNSCC中HPV的事实，包括对患者最优先的内容，可以提高对HPV的理解。
Oropharyngeal cancers are increasingly associated with human papillomavirus (HPV). Little is known about the experience of patients receiving this diagnosis. Semi-structured interviews were conducted with 10 survivors of HPV-related oropharynx cancer. The interviews were transcribed and recurring themes were identified. Physicians were a trusted source of information regarding HPV. Framing the diagnosis in terms of prognosis resonated with patients. The uncertainty about transmission, latency, and communicability colored the dialogue about HPV. Despite some understanding of prevalence and transmission, patients worried about their partner’s risk. Patients sought information about HPV on the internet, but it was not easily navigable. Emotional reactions to the diagnosis remained mostly cancer-centric rather than HPV-centric. A patient education handout was developed in response to patient questions. Additional educational resources explaining the facts about HPV in HNSCC in a consistent way including content of highest priority to patients may improve understanding of HPV.
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DOI：
10.2307/2991697
发表时间：
1999-05-01
期刊：
FAMILY PLANNING PERSPECTIVES
影响因子：
--
作者：
Linnehan, MJE;Groce, NE
通讯作者：
Groce, NE
影响因子：
3.5
作者：
Eberhard, Jakob;Stahl, Olof;Giwercman, Aleksander
通讯作者：
Giwercman, Aleksander
影响因子：
6.2
作者：
Sturgis, Erich M.;Cinciripini, Paul M.
通讯作者：
Cinciripini, Paul M.
影响因子：
2.4
作者：
McPartland, TS;Weaver, BA;Koutsky, LA
通讯作者：
Koutsky, LA
影响因子：
1.4
作者：
Rosen, Natalie O.;Knaeuper, Baerbel;Rosberger, Zeev
通讯作者：
Rosberger, Zeev