"I know it when I see it." The complexities of measuring resilience among parents of children with cancer.
"I know it when I see it." The complexities of measuring resilience among parents of children with cancer.
复制标题
DOI：
10.1007/s00520-014-2249-5
复制
发表时间：
2014-10
影响因子：
3.1
通讯作者：
Jones, Barbara
中科院分区：
文献类型：
--
作者：
Rosenberg, Abby R.;Starks, Helene;Jones, Barbara
促进父母的韧性可能会提供一个机会，以提高儿童癌症后的家庭水平的生存率;然而，测量韧性是具有挑战性的。“理解癌症儿童父母的复原力”是一项针对丧亲和非丧亲父母的横断面、混合方法研究。调查包括Connor-Davidson复原力量表，Kessler-6心理困扰量表，创伤后成长量表以及关于癌症持续影响的开放式问题。我们对开放式回答进行了内容分析，并将我们的印象分为“有弹性”、“没有弹性”或“无法确定”。“复原力”是根据心理成长、没有痛苦和父母报告的意义/目的的证据来确定的。我们比较了一致的印象与仪器分数，以检查对齐。分析按丧亲状态分层。84（88%）非丧亲，21（88%）丧亲父母提供了书面答复。在没有失去亲人的人中，53人（63%）被认为有弹性，15人（18%）没有。在失去亲人的人中，11人（52%）被认为有弹性，5人（24%）没有。所有其他人都提出了一个混合或不完整的情况。评分者决定的“弹性”父母往往有更高的个人资源和更低的心理困扰（p=<0.001-0.01）。非丧亲“弹性”的父母也有更高的创伤后成长（p=0.02）。个人层面的分析表明，只有50-62%的父母的所有3个工具得分与我们对弹性的印象一致。尽管有多种理论，但衡量弹性是一项挑战。我们对弹性的临床印象在100%的病例中是一致的;然而，测量弹性潜在标志物的仪器在大约一半的病例中是一致的。因此，提高复原力需要了解多种因素，包括个人层面的观点、个人资源、适应过程和情感健康。
Promoting parent resilience may provide an opportunity to improve family-level survivorship after pediatric cancer; however, measuring resilience is challenging. The “Understanding Resilience in Parents of Children with Cancer” was a cross-sectional, mixed-methods study of bereaved and non-bereaved parents. Surveys included the Connor-Davidson Resilience scale, the Kessler-6 psychological distress scale, the Post-Traumatic Growth Inventory, and an open-ended question regarding the on-going impact of cancer. We conducted content analyses of open-ended responses and categorized our impressions as “resilient,” “not resilient,” or “unable to determine.” “Resilience” was determined based on evidence of psychological growth, lack of distress, and parent-reported meaning/purpose. We compared consensus-impressions with instrument scores to examine alignment. Analyses were stratified by bereavement status. Eighty-four (88%) non-bereaved, and 21 (88%) bereaved parents provided written responses. Among non-bereaved, 53 (63%) were considered resilient, 15 (18%) were not. Among bereaved, 11 (52%) were deemed resilient, 5 (24%) were not. All others suggested a mixed or incomplete picture. Rater-determined “resilient” parents tended to have higher personal resources and lower psychological distress (p=<0.001–0.01). Non-bereaved “resilient” parents also had higher post-traumatic growth (p=0.02). Person-level analyses demonstrated that only 50–62% of parents had all 3 instrument scores aligned with our impressions of resilience. Despite multiple theories, measuring resilience is challenging. Our clinical impressions of resilience were aligned in 100% of cases; however, instruments measuring potential markers of resilience were aligned in approximately half. Promoting resilience therefore requires understanding of multiple factors, including person-level perspectives, individual resources, processes of adaptation and emotional well-being.
登录
查看更多内容
影响因子：
3.2
作者：
Hsieh, HF;Shannon, SE
通讯作者：
Shannon, SE
影响因子：
6
作者：
Patterson, JM
通讯作者：
Patterson, JM
影响因子：
3.6
作者：
Robinson, Kristen E.;Gerhardt, Cynthia A.;Noll, Robert B.
通讯作者：
Noll, Robert B.
影响因子：
7.4
作者：
Connor, KM;Davidson, JRT
通讯作者：
Davidson, JRT
影响因子：
3.6
作者：
Barakat, LP;Alderfer, MA;Kazak, AE
通讯作者：
Kazak, AE