Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework.
Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework.
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DOI：
10.1002/gps.4990
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发表时间：
2019-01
影响因子：
4
通讯作者：
Banerjee S
中科院分区：
文献类型：
--
作者：
Daley S;Murray J;Farina N;Page TE;Brown A;Basset T;Livingston G;Bowling A;Knapp M;Banerjee S
痴呆症是一项重大的全球卫生和社会护理挑战，家庭照顾者是痴呆症患者取得积极结果的关键决定因素。本研究的目的是为痴呆症患者的家庭照顾者的生活质量(QOL)制定一个概念性框架。我们采用深入的个人定性访谈和焦点小组讨论，反复研究痴呆症患者的家庭照顾者和痴呆症服务机构的工作人员。分析使用了持续的比较技术，以与家庭护理人员的特定研究咨询小组合作的方法为基础。我们完成了与32名家庭照顾者和9名工作人员的41次个人访谈，以及与6名家庭照顾者和5名工作人员的两个焦点小组的访谈。通过分析，我们确定了影响照顾者生活质量的12个主题。这些活动被分成三类，重点关注痴呆症患者、照顾者和外部环境。对于痴呆症患者的照顾者，生活质量结构被发现包括条件特定的领域，这些领域在一般的生活质量评估中不被常规地考虑。这对研究人员、政策制定者和服务提供者在解决和测量痴呆症患者家庭照顾者的生活质量方面具有一定的意义。
Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the Quality of Life (QOL) of family carers of people with dementia. We studied family carers of people with dementia and staff working in dementia services iteratively using in‐depth individual qualitative interviews and focus groups discussions. Analysis used constant comparison techniques underpinned by a collaborative approach with a study‐specific advisory group of family carers. We completed 41 individual interviews with 32 family carers and nine staff and two focus groups with six family carers and five staff. From the analysis, we identified 12 themes that influenced carer QOL. These were organised into three categories focussing on person with dementia, carer, and external environment. For carers of people with dementia, the QOL construct was found to include condition‐specific domains which are not routinely considered in generic assessment of QOL. This has implications for researchers, policy makers, and service providers in addressing and measuring QOL in family carers of people with dementia.
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DOI：
10.1093/gerona/60.3.345
发表时间：
2005-03-01
影响因子：
5.1
作者：
Bruce, DG;Paley, GA;Schaper, F
通讯作者：
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影响因子：
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影响因子：
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作者：
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影响因子：
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作者：
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Cohen, Marlene Zichi