A model of caregiving through the end of life: seeking normal.

A model of caregiving through the end of life: seeking normal.
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整个生命尽头的照料模型:寻求正常。

DOI:
10.1177/0193945911400920
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发表时间:
2012-03
影响因子:
1.8
通讯作者:
Baney B
Baney B
中科院分区:
医学4区
文献类型:
--
作者:
Penrod J;Hupcey JE;Shipley PZ;Loeb SJ;Baney B

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非正式家庭护理人员为临终关怀 (EOL) 做出了重大贡献。使用扎根理论方法阐述了 EOL 护理阶段和过渡的理论模型,以探索 46 名患有各种生命限制疾病的成年人的家庭护理人员的经历。导出的模型描述了从诊断前到丧亲之痛的护理的四个阶段。当疾病进展明显挑战护理人员所实现的既定“稳定状态”时,所经历的关键转变将划分阶段。基本的社会过程被定义为“寻求正常”,因为护理人员在满足护理需求的同时寻求可靠的日常生活模式。了解 EOL 护理的进展使临床医生能够更好地支持家庭护理人员作为护理的共同提供者和共同接受者。
Informal family caregivers provide significant contributions to end-of-life (EOL) care. A theoretical model of the phases and transitions of EOL caregiving was explicated using grounded theory methods to explore the experiences of 46 family caregivers of adults suffering a variety of life-limiting conditions. The derived model describes four phases of caregiving spanning prediagnosis through bereavement. Phases are demarcated by key transitions experienced when the illness progression manifestly challenges the established “steady state” achieved by the caregiver. The basic social process was defined as “seeking normal” as caregivers sought reliable patterns of everyday life while meeting the demands of caregiving. Understanding the progression of EOL caregiving enables clinicians to better support family caregivers as both coproviders and corecipients of care.
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发表时间: 2001-03-14
影响因子: 120.7
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