Trust and inclusion during the Covid-19 pandemic: Perspectives from Black and South Asian people living with dementia and their carers in the UK.
Trust and inclusion during the Covid-19 pandemic: Perspectives from Black and South Asian people living with dementia and their carers in the UK.
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DOI：
10.1002/gps.5689
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发表时间：
2022-03
影响因子：
4
通讯作者：
Davies, Nathan
中科院分区：
文献类型：
--
作者：
Armstrong, Megan;Aker, Narin;Nair, Pushpa;Walters, Kate;Barrado-Martin, Yolanda;Kupeli, Nuriye;Sampson, Elizabeth L.;Manthorpe, Jill;West, Emily;Davies, Nathan
与英国的白色同龄人相比，来自少数民族背景的痴呆症患者更有可能在较晚的时候被诊断出来，并且获得的健康和社会护理支持较少。新冠肺炎加剧了健康不平等，削弱了服务不足社区对政府和卫生服务的信任。该研究的更广泛目的是探索新冠肺炎对患有痴呆症的黑人和南亚人及其护理人员的影响，以及探索痴呆症护理的经验。本文具体探讨了他们的信任和不信任的生态模型。对11名家庭照顾者和4名来自南亚或黑人社区的痴呆症患者进行了半结构化访谈。采用专题分析法分析数据。采用探索性定性设计。四个主要主题是在结构，组织，社区和个人层面探索信任。在结构层面上，与会者讨论了新冠肺炎的不公平性，对英国政府缺乏信任及其信息传递的混乱，以及有时导致媒体使用减少的焦虑。在组织层面，有一些证据表明，医疗保健专业人员缺乏以人为本和文化敏感的护理，以及对护理院作为安全场所的担忧。在邻里社区一级，与会者讨论了不信任以及加强关系的问题，在个人一级，服务知识、身份和信仰等因素影响了他们对大流行病的体验。痴呆症患者需要各级支持，这项研究强调了大流行如何影响每个层面。应探讨如何加强对政府和保健专业人员的信任，同时提供适应文化的保健信息。除此之外，研究文化价值观和规范如何影响对痴呆症的求助反应，并增加对服务的信任，这可能有助于大流行后。大流行影响了来自少数民族背景的痴呆症患者及其护理人员在社会生态模式的各个层面据报道，对政府缺乏信任，媒体导致焦虑增加，人们认为医疗保健专业人员缺乏以人为本和文化敏感的护理，对护理院作为安全场所的担忧参与者与社区的关系，对服务的了解，身份和信仰影响了他们对大流行病的体验
People from ethnic minority backgrounds living with dementia are more likely to be diagnosed later and have less access to health and social care support than their White counterparts in the United Kingdom (UK). Covid‐19 has exacerbated health inequalities and diminished trust from underserved communities in the government and health services. The wider aim of the study was to explore the impact of covid‐19 on Black and South‐Asian people living with dementia and their carers as well as exploring the experiences of dementia care. The present paper specifically explores their views on trust and mistrust using an ecological model. Semi‐structured interviews were conducted with 11 family carers and four people living with dementia from South Asian or Black communities living in the community. Thematic analysis was used to analyse data. An exploratory qualiative design was used. Four main themes were developed exploring trust at the structural, organisational, community and individual level. At the structural level, participants discussed the inequity of Covid‐19, some lack of trust in the UK Government and confusion in its messaging, and the anxiety sometimes leading to curtailment of media usage. At the organisational level, there was some evidence of a perceived lack of person‐centred and culturally sensitive care from healthcare professionals, as well as concerns around care homes as places of safety. At the neighbourhood community level, participants discussed both a distrust as well as a strengthening of relationships and, at the individual level, factors such as knowledge of services, identity, and faith influenced their experience of the pandemic. People living with dementia need support at all levels and this study highlights how the pandemic impacted each level. Ways to improve trust in the Government and health professionals alongside culturally adapted health messaging should be explored. Alongside this, an examination of how cultural values and norms may influence help‐seeking responses to dementia and increase trust in services may be helpful post‐pandemic. The pandemic impacted people from ethnic minority backgrounds living with dementia and their carers at each level of the socioecological model A lack of trust in the Government and an increase in anxiety due to the media was reported There was a perceived lack of person‐centred and culturally sensitive care from healthcare professionals and concerns around care homes as places of safety Participants relationships with their community, knowledge of services, identity, and faith influenced their experience of the pandemic
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影响因子：
3.2
作者：
Hanson, Kristin;O'Dwyer, Emma;Chaudhuri, Sharmistha;Silva Souza, Luiz Gustavo;Vandrevala, Tushna
通讯作者：
Vandrevala, Tushna
影响因子：
5.4
作者：
Drury J;Carter H;Ntontis E;Guven ST
通讯作者：
Guven ST
DOI：
10.1037/tra0000793
发表时间：
2020-08-01
影响因子：
6.3
作者：
Greenberg, Nicole E.;Wallick, Amanda;Brown, Lisa M.
通讯作者：
Brown, Lisa M.
影响因子：
1.9
作者：
Ahmed, Saifuddin;Matthes, Joerg
通讯作者：
Matthes, Joerg
影响因子：
4
作者：
Liu KY;Howard R;Banerjee S;Comas-Herrera A;Goddard J;Knapp M;Livingston G;Manthorpe J;O'Brien JT;Paterson RW;Robinson L;Rossor M;Rowe JB;Sharp DJ;Sommerlad A;Suárez-González A;Burns A
通讯作者：
Burns A