Decision Aid Interventions for Family Caregivers of Persons With Advanced Dementia in Decision-Making About Feeding Options: A Scoping Review.
Decision Aid Interventions for Family Caregivers of Persons With Advanced Dementia in Decision-Making About Feeding Options: A Scoping Review.
复制标题
DOI：
10.1016/j.jamda.2022.08.014
复制
发表时间：
2022-12
影响因子：
7.6
通讯作者：
Wu, Bei
中科院分区：
文献类型：
--
作者：
Pei, Yaolin;Qi, Xiang;Schulman-Green, Dena;Hu, Mengyao;Wang, Kaipeng;Wu, Bei
我们提供了一个文献综述，为患有晚期痴呆症的老年人的家庭照顾者提供关于关于管状喂养决策的决策援助干预。我们综合了(1)决策辅助工具开发、实施和评估过程中理论的使用；(2)决策辅助干预措施的开发、内容和交付；(3)照顾者使用决策辅助干预措施的经验；(4)决策辅助干预措施对照顾者关于喂养选择的决策质量的影响。作用域审查。我们对2000年1月1日至2022年6月30日发表在MEDLINE、EMBASE、Cochrane图书馆、CINAHL和Web of Science数据库上的同行评议研究进行了范围审查。研究过程遵循Arksey和O‘Malley的方法论框架，包括确定研究问题、选择相关研究、绘制数据图表和总结结果。选择了关于喂养选择的决策辅助干预的经验性文章。报告了4种独特的决策辅助干预措施的6种出版物被纳入。所有干预措施都是针对患有晚期痴呆症的老年人的照顾者。三个决策辅助工具从文化上改编自现有的决策辅助工具。在这6份出版物中使用了渥太华决策支持框架和国际患者决策援助标准框架。干预措施旨在通过静态分娩方法改善对照顾者进行管状喂养的决策。照顾者对这些辅助决策工具的评价是有帮助和可以接受的。决策冲突和对喂养选择的了解是最常见的评估结果。在痴呆症照顾者中持续发现决策冲突的减少和知识的增加，但没有发现对使用管状喂养的偏好的干预效果。辅助决策干预措施有效地改善了目标人群中关于试管喂养的决策。对现有决策辅助干预的文化适应是主要战略。然而，在这一过程中缺乏文化适应框架的指导可能会导致难以解释照顾者的行为变化。此外，仅仅提供信息并不足以改变照顾者的偏好或使用管状喂养的行为。在未来的研究中，需要对文化适应和互动干预采取系统的方法。
We provided an overview of the literature on decision aid interventions for family caregivers of older adults with advanced dementia regarding decision making about tube feeding. We synthesized (1) the use of theory during the development, implementation, and evaluation of decision aids; (2) the development, content, and delivery of decision aid interventions; (3) caregivers’ experience with decision aid interventions; and (4) the effect of decision aid interventions on caregivers’ quality of decision-making about feeding options. Scoping review. We conducted a scoping review of peer-reviewed studies published January 1, 2000eJune 30, 2022, in MEDLINE, EMBASE, The Cochrane Library, CINAHL, and Web of Science databases. The process was guided by Arksey and O’Malley’s methodological framework, which includes identifying the research question, choosing related studies, charting the data, and summarizing results. Empirical articles concerning the decision aid interventions about feeding options were selected. Six publications reporting 4 unique decision aid interventions were included. All the interventions targeted caregivers of older adults with advanced dementia. Three decision aids were culturally adapted from existing decision aids. The Ottawa Decision Support Framework and the International Patient Decision Aid Standards Framework were used in these 6 publications. Interventions aimed to improve decision making regarding tube feeding for caregivers through static delivery methods. Caregivers rated these decision aids as helpful and acceptable. Decisional conflict and knowledge of feeding options were the most common outcomes evaluated. Reduction in decisional conflict and increase in knowledge were consistently found among dementia caregivers, but no intervention effects were found on preferences for the use of tube feeding. Decision aid interventions effectively improve decision-making regarding tube feeding among the target population. Cultural adaptation of an existing decision aid intervention is the main strategy. However, the lack of guidance of a cultural adaptation framework in this process may lead to difficulties explaining caregivers’ behavioral changes. Moreover, merely providing information is not enough to change caregivers’ preferences or behavior of use of tube feeding. A systematic approach to cultural adaptation and interactive intervention is needed in future studies.
登录
查看更多内容
DOI：
10.1111/j.1532-5415.2011.03629.x
发表时间：
2011-11-01
影响因子：
6.3
作者：
Hanson, Laura C.;Carey, Timothy S.;Mitchell, Susan L.
通讯作者：
Mitchell, Susan L.
影响因子：
4
作者：
Anderson, Stuart;Allen, Pauline;Goodwin, Nick
通讯作者：
Goodwin, Nick
影响因子：
9.8
作者：
Pham, Mai T.;Rajic, Andrijana;Greig, Judy D.;Sargeant, Jan M.;Papadopoulos, Andrew;McEwen, Scott A.
通讯作者：
McEwen, Scott A.
影响因子：
2.7
作者：
Hanson, Laura C.;Gilliam, Robin;Lee, Tae Joon
通讯作者：
Lee, Tae Joon
DOI：
10.1056/nejmoa0902234
发表时间：
2009-10-15
期刊：
The New England journal of medicine
影响因子：
--
作者：
Mitchell SL;Teno JM;Kiely DK;Shaffer ML;Jones RN;Prigerson HG;Volicer L;Givens JL;Hamel MB
通讯作者：
Hamel MB