The Youth Patient and Public Involvement Café-A youth-led model for meaningful involvement with children and young people.
The Youth Patient and Public Involvement Café-A youth-led model for meaningful involvement with children and young people.
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青年患者及公众参与咖啡馆——一种由青年主导的儿童和青少年深度参与模式
DOI：
10.1111/hex.13597
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发表时间：
2022-12
影响因子：
3.2
通讯作者：
Robertson, Sam
中科院分区：
文献类型：
--
作者：
Thomson, Abigail;Peasgood, Edward;Robertson, Sam
现在几乎没有什么有意义的框架或工具包可供青年人参与。合作生产是一种较新的患者和公众参与（PPI）方法，强调权力分享的重要性，将年轻人作为研究过程中的平等伙伴。本文探讨了一个共同制作的PPI空间的年轻人所遇到的成功和挑战。这篇论文是由一个年轻人的团队写的，他们在18个月的时间里开发和开发了青年PPI咖啡馆。它探讨了我们如何开发一个青年主导的空间参与研究。作者反思了他们的经验，提供了如何在NHS中提供青年PPI和合作生产的例子。通过“与”年轻人合作，而不是“为”他们工作，我们提供了一个完全由年轻人主导的参与空间的成功和挑战的见解。尽管我们在为儿童和年轻人塑造心理健康研究方面卓有成效，但我们面临着象征主义、资源、多样性和包容性的挑战。让青年有意义地参与研究，有可能为宏观和微观层面的研究提供信息，使研究和支持青年的系统发生积极变化。在该项目的每个阶段，从小组的制定、交付和发展，到本手稿的编写和传播，都有年龄在16-24岁之间、有实际经验的年轻人参加。苏塞克斯合作NHS基金会信托的慈善机构“Heads On”为这项研究提供了资金。
There are few meaningful frameworks or toolkits that exist for involvement with young people. Coproduction is a more recent patient and public involvement (PPI) approach that emphasizes the importance of power‐sharing, to set young people as equal partners in the research process. This paper explores the successes and challenges encountered by one coproduced PPI space for young people. This paper is written by a team of young people who developed and worked on the Youth PPI Café over a period of 18 months. It explores how we developed a youth‐led space for involvement in research. The authors have reflected on their experiences, providing examples of how youth PPI and coproduction were delivered in the NHS, in practice. By working ‘with’ young people, rather than ‘for’ them, we offer insights into the successes and challenges of an entirely youth‐led involvement space. Despite being effective in shaping mental health research for children and young people, we faced challenges with tokenism, resourcing and diversity and inclusion. Involving youth meaningfully in research has the potential to inform studies at a macro‐ and microlevel, enabling positive change within research and within the systems that support young people. Young people aged 16–24 years with lived experience were included at every stage of this project, from formulation to the delivery and development of the group, to the preparation of this manuscript and its dissemination. Sussex Partnership NHS Foundation Trust's charity ‘Heads On’ provided funding for this study.
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影响因子：
2.4
作者：
Faulkner, Alison;Thompson, Rose
通讯作者：
Thompson, Rose
影响因子：
4.1
作者：
Ives, Jonathan;Damery, Sarah;Redwod, Sabi
通讯作者：
Redwod, Sabi
影响因子：
3.2
作者：
Boylan, Anne-Marie;Locock, Louise;Staniszewska, Sophie
通讯作者：
Staniszewska, Sophie
DOI：
10.1136/bmj.n178
发表时间：
2021-02-15
期刊：
BMJ (Clinical research ed.)
影响因子：
--
作者：
Tembo D;Hickey G;Montenegro C;Chandler D;Nelson E;Porter K;Dikomitis L;Chambers M;Chimbari M;Mumba N;Beresford P;Ekiikina PO;Musesengwa R;Staniszewska S;Coldham T;Rennard U
通讯作者：
Rennard U
影响因子：
3.2
作者：
Wright, David;Foster, Claire;Wilson, Roger
通讯作者：
Wilson, Roger