Addressing Stigma Through a Virtual Community for People Living with HIV: A Mixed Methods Study of the PositiveLinks Mobile Health Intervention.

Addressing Stigma Through a Virtual Community for People Living with HIV: A Mixed Methods Study of the PositiveLinks Mobile Health Intervention.
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DOI:
10.1007/s10461-018-2174-6
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发表时间:
2018-10
期刊:
影响因子:
4.4
通讯作者:
Dillingham R
Dillingham R
中科院分区:
医学2区
文献类型:
--
作者:
Flickinger TE;DeBolt C;Xie A;Kosmacki A;Grabowski M;Waldman AL;Reynolds G;Conaway M;Cohn WF;Ingersoll K;Dillingham R

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耻辱对生活质量和艾滋病毒护理结果产生负面影响。 PositiveLinks 是一种移动健康干预措施,其中包括安全的匿名社区留言板 (CMB)。我们调查了关于耻辱的讨论和耻辱分数的变化。在我们试点项目的 77 名参与者中,63% 是男性,49% 是黑人,72% 的收入低于联邦贫困线。 21% 的 CMB 帖子 (394/1834) 包含与耻辱相关的内容,包括涉及内心和人际耻辱的消极(经历耻辱)和积极(克服耻辱)帖子。较高的基线耻辱感与压力呈正相关,与艾滋病毒护理自我效能呈负相关。 12 个月的数据显示,CMB 上的海报与非海报上的海报相比(− 4.5 与 − 0.63)以及与耻辱相关内容的海报与其他内容相比(− 5.1 与 − 3.3),耻辱感得分有更大改善的趋势。初步证据表明,通过诊所附属的智能手机应用程序访问的支持性虚拟社区可以帮助艾滋病毒感染者消除耻辱感。
Stigma has negative consequences for quality of life and HIV care outcomes. PositiveLinks is a mobile health intervention that includes a secure anonymous community message board (CMB). We investigated discussion of stigma and changes in stigma scores. Of 77 participants in our pilot, 63% were male, 49% Black, and 72% had incomes below the federal poverty level. Twenty-one percent of CMB posts (394/1834) contained stigma-related content including negative (experiencing stigma) and positive (overcoming stigma) posts addressing intrapersonal and interpersonal stigma. Higher baseline stigma was positively correlated with stress and negatively correlated with HIV care self-efficacy. 12-month data showed a trend toward more improved stigma scores for posters on the CMB versus non-posters (− 4.5 vs − 0.63) and for posters of stigma-related content versus other content (− 5.1 vs − 3.3). Preliminary evidence suggests that a supportive virtual community, accessed through a clinic-affiliated smartphone app, can help people living with HIV to address stigma.
DOI: 10.1080/13691058.2014.905706
发表时间: 2014-06
期刊: Culture, health & sexuality
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