Understanding the psycho-social context for a new early intervention for resistance to change that aims to strike a beneficial balance between structure and flexibility.
Understanding the psycho-social context for a new early intervention for resistance to change that aims to strike a beneficial balance between structure and flexibility.
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DOI：
10.1186/s12888-021-03519-1
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发表时间：
2021-12-11
期刊：
影响因子：
4.4
通讯作者：
Woodcock KA
中科院分区：
文献类型：
--
作者：
Blackwell S;Zylberberg A;Scerif G;Miller S;Woodcock KA
与预期变化有关的情绪和行为问题--对变化的抵触--与神经发育障碍的残疾有关，包括自闭症谱系障碍(ASD)、Prader-Willi(PWS)和脆性X综合征(FXS)。构建例程是最大限度地减少电流变化阻力的最佳实践。但完整的结构是不切实际的，在早期生活中的灵活性实际上可能通过支持认知发展来减少后来的抵抗力。我们的目的是研究有孩子有可能对变化产生抵触情绪的家庭的心理社会背景，以确定干预措施的设计要求，在结构和灵活性之间取得有益的平衡。36名4-12岁 儿童的照顾者(17名自闭症、15名PWS和4名FXS)参加了与12名专业利益相关者合作设计的访谈。孩子们需要感觉到他们控制了灵活性，但他们也需要在做出选择、理解计划(使用单独定制的视觉效果)和减少焦虑方面的支持。照顾者需要一种他们可以完全控制的可访问的方法，并且他们可以为他们的孩子量身定做。照顾者还需要围绕结构和灵活性提供明确的指导、教育和支持。我们提出了一种数字方法，以满足已确定的需求。它解决了最令人困惑的挑战，在一个儿童可以感觉到他们完全控制的游戏环境中为儿童提供了灵活性，同时照顾者可以在现实中保持控制。此外，还将为儿童和照顾者提供个性化支持。网上版载有补充材料，可在10.1186/s12888-021-03519-1查阅。
Emotional and behavioural problems linked to changes to expectations – resistance to change – are linked to disability in neurodevelopmental disorders, including autism spectrum disorder (ASD), Prader-Willi (PWS) and fragile X syndromes (FXS). Structuring routines is best practice for minimising current resistance to change. But complete structure is impractical and flexibility in early life may actually reduce later resistance by supporting cognitive development. We aimed to examine the psycho-social context of families with children at risk of developing resistance to change so as to identify design requirements for an intervention that strikes a beneficial balance between structure and flexibility. Thirty-six caregivers of children aged 4–12 years (17 ASD, 15 PWS, and 4 FXS) took part in an interview designed collaboratively with 12 professional stakeholders. Children need to feel like they are in control of flexibility but they also need support in choice making, understanding plans (using individually tailored visuals) and anxiety reduction. Caregivers need an accessible approach that they have full control over, and which they can tailor for their child. Caregivers also need clear guidance, education and support around structure and flexibility. We propose a digital approach which addresses the needs identified. It tackles the most perplexing challenge by presenting flexibility to children in the context of a game that children can feel they have full control over, whilst caregivers can maintain control in reality. Furthermore, individualised support for children and caregivers would be enabled. The online version contains supplementary material available at 10.1186/s12888-021-03519-1.
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影响因子：
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作者：
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通讯作者：
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DOI：
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影响因子：
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通讯作者：
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