Expectations and reality: perceptions of support among African American breast cancer survivors.
Expectations and reality: perceptions of support among African American breast cancer survivors.
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DOI：
10.1080/13557858.2017.1373072
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发表时间：
2019-10
影响因子：
3.1
通讯作者：
Heiney SP
中科院分区：
文献类型：
--
作者：
Felder TM;Estrada RD;Quinn JC;Phelps KW;Parker PD;Heiney SP
乳腺癌等疾病的经历并不是一成不变的。正如生理需求随着患者从诊断、治疗到长期生存的转变而变化一样，他们对社会支持的需求也会发生变化。我们应用过渡理论框架来探索患有乳腺癌的非裔美国女性是如何概念化的，并在她们的乳腺癌之旅中经历了支持。我们从南卡罗来纳州的一家区域癌症中心招募了16名患有乳腺癌的非裔美国女性，以完成定性的、半结构化的访谈。我们使用主题分析反复检查逐字记录。出现了三个核心主题：“我想她应该”：当支持达到患者的期望时；“我没有预料到这一点，这只是让我感觉很好”：当现实超出预期时；以及“不要试图让我变得无效”：当给予的支持不是人们所希望的时候。幸存者分享了他们的家人、朋友和神职人员如何满足他们对情感(例如祈祷、分享对上帝的肯定)和工具性支持(例如做饭、打扫房屋)的需求。他们强调，从医疗保健提供者那里获得情感支持是一个令人愉快的惊喜。然而，幸存者也描述了当家人提供不需要或不想要的支持时，意想不到的失望。应用过渡理论，我们发现，社会支持是一个双向协商的过程，患有乳腺癌的非裔美国女性认为支持是有帮助的和可接受的，这取决于谁提供支持，提供什么类型的支持，以及何时提供支持。其社会支持网络的成员(例如，家人、朋友、提供者)应定期评估幸存者不断变化的需求，以确保社会支持与幸存者的需求和期望相协调。
The experience of an illness such as breast cancer is not a static event. Just as physiological needs change as a patient transitions through diagnosis, treatment, to long-term survivorship, so too will their needs for social support. We applied a transitions theory framework to explore how African American women with breast cancer conceptualized and experienced support along their breast cancer journey. We recruited 16 African American women with breast cancer from a regional cancer center in South Carolina to complete qualitative, semi-structured interviews. We iteratively examined verbatim transcripts using thematic analysis. Three core themes emerged: “I guess she was supposed to”: When support meets patient expectations; “I wasn’t expecting that and that just made me feel so good”: When reality exceeds expectations; and “Don’t try to make an invalid out of me”: When support given wasn’t what was desired. Survivors shared how their family, friends and clergy met their needs for emotional (e.g., prayer, sharing affirmations about God) and instrumental support (e.g., cooking meals, house cleaning). They emphasized how receiving emotional support from their healthcare providers was a pleasant surprise. However, survivors also described unexpected disappointments when family members offered support that was un-needed or un-desired. Applying transitions theory, we found that social support is a process of bidirectional negotiation where African American women with breast cancer perceive support as helpful and acceptable depending on who offers support, what type of support is offered, and when it is offered. Members of their social support network (e.g., family, friends, providers) should periodically assess the survivor’s evolving needs to ensure the social support harmonizes with the needs and expectations of the survivor.
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影响因子：
2.1
作者：
Lewis, Pamela E.;Sheng, Melissa;Schover, Leslie R.
通讯作者：
Schover, Leslie R.
影响因子：
3.6
作者：
Arora, Neeraj K.;Rutten, Lila J. Finney;Hawkins, Robert P.
通讯作者：
Hawkins, Robert P.
影响因子：
2.2
作者：
Roff, Lucinda Lee;Simon, Cassandra E.;Pleasants, Heather M.
通讯作者：
Pleasants, Heather M.
DOI：
10.1007/s11764-008-0050-5
发表时间：
2008-06-01
期刊：
Journal of cancer survivorship : research and practice
影响因子：
--
作者：
Schulz, Emily;Holt, Cheryl L;Lawrence, Hope
通讯作者：
Lawrence, Hope
影响因子：
2
作者：
TILDEN, VP
通讯作者：
TILDEN, VP