Family Caregivers' Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study.
Family Caregivers' Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study.
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DOI：
10.3390/ijerph19020942
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发表时间：
2022-01-14
影响因子：
--
通讯作者：
Musa KI
中科院分区：
文献类型：
--
作者：
Haji Mukhti MI;Ibrahim MI;Tengku Ismail TA;Nadal IP;Kamalakannan S;Kinra S;Musa KI
背景：中风是一种慢性疾病，需要中风幸存者得到家人的长期支持。这尤其是因为在医院之外无法获得中风后康复服务。 2019 年冠状病毒病 (COVID-19) 危机和马来西亚的大流行限制预计将呈指数级增加家庭护理人员支持中风幸存者的需求。因此，本研究旨在探讨在COVID-19大流行期间支持中风幸存者的家庭照顾者的负担、经历和应对机制。方法：2020 年 11 月至 2021 年 6 月在马来西亚进行了一项现象学定性研究。共有 13 名受访者是从吉兰丹州哥打巴鲁的两个公共康复中心招募的。对参与者进行了深入访谈。通过有目的的抽样，全面反映了受访者的观点。采访以吉兰丹方言进行，并使用主题分析进行记录、转录和分析。结果：确定了关于负担和经验的三个主题。它们使现有问题恶化，新问题不断出现，负担和挑战减少。还确定了应对策略的两个主题。它们是以问题为中心的参与和以情感为中心的参与。结论：COVID-19 大流行改变了整个中风管理系统。虽然家庭照顾者大多因不同的经历而面临额外的负担，但他们也遇到了疫情带来的一些积极影响。综合医疗保健系统，特别是在数字化时代，是建立多个利益相关者的协作承诺的重要因素，以补偿大流行期间中风幸存者的负担和维持医疗保健。
Background: Stroke is a chronic disease that requires stroke survivors to be supported long-term by their families. This is especially because of the inaccessibility to post-stroke rehabilitation outside hospitals. The Corona Virus Disease 2019 (COVID-19) crisis and the pandemic restrictions in Malaysia are expected to exponentially increase the demand from family caregivers in supporting stroke survivors. Thus, this study aims to explore the burden, experience, and coping mechanism of the family caregivers supporting stroke survivors during the COVID-19 pandemic. Methodology: A phenomenological qualitative study was conducted from November 2020 to June 2021 in Malaysia. A total of 13 respondents were recruited from two public rehabilitation centers in Kota Bharu, Kelantan. In-depth interviews were conducted with the participants. Comprehensive representation of perspectives from the respondents was achieved through purposive sampling. The interviews were conducted in the Kelantanese dialect, recorded, transcribed, and analyzed using thematic analysis. Results: Three themes on burdens and experiences were identified. They were worsening pre-existing issues, emerging new issues, and fewer burdens and challenges. Two themes on coping strategies were also identified. They were problem-focused engagement and emotion-focused engagement. Conclusions: The COVID-19 pandemic has changed the entire system of stroke management. While family caregivers mostly faced the extra burden through different experiences, they also encountered some positive impacts from the pandemic. The integrated healthcare system, especially in the era of digitalization, is an important element to establish the collaborative commitment of multiple stakeholders to compensate burden and sustain the healthcare of stroke survivors during the pandemic.
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影响因子：
2.3
作者：
Gertrude, Namale;Kawuma, Rachel;Seeley, Janet
通讯作者：
Seeley, Janet
影响因子：
2.9
作者：
KREFTING, L
通讯作者：
KREFTING, L
DOI：
10.1097/jnn.0b013e3181f8a575
发表时间：
2010-12
期刊：
The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses
影响因子：
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作者：
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影响因子：
3.5
作者：
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通讯作者：
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影响因子：
1.7
作者：
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通讯作者：
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