An internal performance assessment of CancerGene Connect: an electronic tool to streamline, measure and improve the genetic counseling process.
An internal performance assessment of CancerGene Connect: an electronic tool to streamline, measure and improve the genetic counseling process.
复制标题
DOI：
10.1007/s10897-014-9732-5
复制
发表时间：
2014-12
影响因子：
1.9
通讯作者：
Ross, Theodora S.
中科院分区：
文献类型：
--
作者：
Pritzlaff, Mary;Yorczyk, Arielle;Robinson, Linda S.;Pirzadeh-Miller, Sara;Lin, Tirun;Euhus, David;Ross, Theodora S.
关键词：
癌症基因连接(CGC)是一个基于网络的程序，它结合了家庭和病史、癌症风险评估、心理社会评估、报告模板、结果跟踪系统和患者跟踪系统的收集。CGC的表现通过几种方式进行评估：针对人口统计和健康变量分析预约前完成数据；评估每个病例的总体时间并将遗传顾问输入的数据与患者进行比较的时间研究；以及通过观察和采访患者对计划进行测量的质量评估。在他们被任命之前，2414名患者中有52.3%完成了CGC的在线患者问卷部分。不同种族和族裔群体的毕业率有很大差异。县医院患者完成问卷的可能性低于参保患者(p<；0.0001)；同样，未参保患者和参加联邦医疗保险/医疗补助的患者完成问卷的可能性低于私人患者(p<；0.0001)。平均每个病例的遗传咨询时间为82分钟，咨询者和患者是否完成CGC没有显著差异。与之前报道的使用传统风险评估和记录方法的每个病例的平均时间相比，CGC减少了大约14%-46%的遗传顾问时间。所有接受调查的用户都觉得问卷很容易理解。CGC是简化工作流程的有效工具，并提供了一个标准化的数据收集工具，可用于评估和改进遗传咨询过程。
CancerGene Connect (CGC) is a web-based program that combines the collection of family and medical history, cancer risk assessment, psychosocial assessment, report templates, a result tracking system, and a patient follow up system. The performance of CGC was assessed in several ways: pre-appointment completion data analyzed for demographic and health variables; a time study to assess overall time per case and to compare the data entry by the genetic counselor compared to the patient, and a measured quality assessment of the program via observation and interview of patients. Prior to their appointment, 52.3% of 2,414 patients completed the online patient questionnaire section of CGC. There were significant differences in completion rates among racial and ethnic groups. County hospital patients were less likely to complete the questionnaire than insured patients (p<0.0001); and likewise uninsured patients and patients with Medicare/Medicaid were less likely to complete the questionnaire than private patients (p<0.0001). The average genetic counseling time per case was 82 minutes, with no significant differences whether the counselor or the patient completed CGC. CGC reduces genetic counselor time by approximately 14%-46% compared to average time per case using traditional risk assessment and documentation methods previously reported. All surveyed users felt the questionnaire was easy to understand. CGC is an effective tool that streamlines workflow, and provides a standardized data collection tool that can be used to evaluate and improve the genetic counseling process.
登录
查看更多内容
影响因子：
1.9
作者：
Appleby-Tagoe, Julia H.;Foulkes, William D.;Palma, Laura
通讯作者：
Palma, Laura
影响因子：
120.7
作者：
Chen, Sining;Wang, Wenyi;Parmigiani, Giovanni
通讯作者：
Parmigiani, Giovanni
影响因子：
2.2
作者：
Cohen, Stephanie A.;McIlvried, Dawn E.
通讯作者：
McIlvried, Dawn E.
影响因子：
5.1
作者：
Jani, Yogini Hariprasad;Ghaleb, Maiscon Abdullah;Wong, Ian Chi Kei
通讯作者：
Wong, Ian Chi Kei
影响因子：
5
作者：
Pinsky, PF;Kramer, BS;Buys, S
通讯作者：
Buys, S