Making sense of genetic uncertainty: the role of religion and spirituality.
Making sense of genetic uncertainty: the role of religion and spirituality.
复制标题
理解遗传的不确定性：宗教和灵性的作用。
DOI：
10.1002/ajmg.c.30196
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发表时间：
2009-02-15
影响因子：
3.1
通讯作者：
White, Mary T.
中科院分区：
文献类型：
--
作者：
White, Mary T.
本文认为，在某种程度上，宗教和精神信仰可以帮助人们应对遗传的不确定性，在遗传咨询中进行有限的精神评估可能是合适的。这篇论文首先阐述了为什么遗传信息在本质上是不确定的，以及为什么这种不确定性会在医学上、道德上和精神上造成问题。接下来是对有助于风险评估的因素范围的回顾，包括一些在应对不确定性时常用的启发式方法。接下来的两个部分总结了最近关于宗教和精神信仰在遗传决策中的不同作用的研究，以及在遗传咨询中进行精神评估的挑战。基于这些发现，宗教和精神信仰被假设为一种启发式，一些人会利用它来应对他们的遗传风险。在帮助这样的客户的利益，有限的精神评估被推荐和描述。讨论了与这种有限评估相关的一些挑战和风险。由于一些宗教和精神信仰可能与医学的价值观相冲突，一些决定仍然是有问题的。
This paper argues that to the extent that religious and spiritual beliefs can help people cope with genetic uncertainty, a limited spiritual assessment may be appropriate in genetic counseling. The paper opens by establishing why genetic information is inherently uncertain and why this uncertainty can be medically, morally, and spiritually problematic. This is followed by a review of the range of factors that can contribute to risk assessments, including a few heuristics commonly used in responses to uncertainty. The next two sections summarize recent research on the diverse roles of religious and spiritual beliefs in genetic decisions and challenges to conducting spiritual assessments in genetic counseling. Based on these findings, religious and spiritual beliefs are posited as serving essentially as a heuristic that some people will utilize in responding to their genetic risks. In the interests of helping such clients, a limited spiritual assessment is recommended and described. Some of the challenges and risks associated with this limited assessment are discussed. Since some religious and spiritual beliefs can conflict with the values of medicine, some decisions will remain problematic.
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