Self-management: Enabling and empowering patients living with cancer as a chronic illness.

Self-management: Enabling and empowering patients living with cancer as a chronic illness.
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DOI:
10.3322/caac.20093
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发表时间:
2011-01
期刊:
CA: a cancer journal for clinicians
影响因子:
--
通讯作者:
Wagner EH
Wagner EH
中科院分区:
其他
文献类型:
--
作者:
McCorkle R;Ercolano E;Lazenby M;Schulman-Green D;Schilling LS;Lorig K;Wagner EH

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随着最近癌症早期发现、诊断和治疗的进步,癌症患者的寿命延长了,他们的癌症可能会被作为一种慢性病进行治疗。癌症作为一种慢性病,对患者和家庭提出了管理自己护理的新要求,它挑战了肿瘤学工作在治疗后完成的旧范式。然而,作为一种慢性病,癌症护理是一个从预防到生命终结的连续过程,在这两者之间需要早期发现、诊断、治疗和生存。在这篇文章中,我们回顾了自我管理干预,使患者和家属能够参与管理他们的护理沿着这一连续体。我们回顾了癌症患者及其家属在癌症治疗、生存和临终阶段的自我管理干预的随机对照试验。我们还提出了慢性护理模式作为一种护理模式,肿瘤学实践可以使用这种模式来使患者和家人能够从事自我管理。我们的结论是,尽管需要一种共同的语言来谈论自我管理和一套共同的癌症护理自我管理行动,但肿瘤学实践现在可以与他们的患者建立牢固的关系,并制定共同商定的护理计划,使患者能够以他们喜欢的方式护理自己。
With recent improvements in early detection, diagnosis and treatment of cancer, people with cancer are living longer, and their cancer may be managed as a chronic illness. Cancer as a chronic illness places new demands on patients and families to manage their own care, and it challenges old paradigms that oncology's work is done after treatment. As a chronic illness, however, cancer care occurs on a continuum that stretches from prevention to the end of life, with early detection, diagnosis, treatment, and survivorship in between. In this paper, we review self-management interventions that enable patients and families to participate in managing their care along this continuum. We review randomized controlled trials of self-management interventions with cancer patients and families in the treatment, survivorship, and end-of-life phases of the cancer-care continuum. We also present the Chronic Care Model as a model of care that oncology practices can use to enable and empower patients and families to engage in self-management. We conclude that, the need for a common language by which to speak about self-management and a common set of self-management actions for cancer care notwithstanding, oncology practices can now build strong relationships with their patients and formulate mutually-agreed upon care plans that enable and empower patients to care for themselves in the way they prefer.
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