Development of the EQ-5D-Y: a child-friendly version of the EQ-5D.

Development of the EQ-5D-Y: a child-friendly version of the EQ-5D.
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DOI:
10.1007/s11136-010-9648-y
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发表时间:
2010-08
影响因子:
3.5
通讯作者:
Ravens-Sieberer, Ulrike
Ravens-Sieberer, Ulrike
中科院分区:
医学2区
文献类型:
--
作者:
Wille, Nora;Badia, Xavier;Bonsel, Gouke;Burstrom, Kristina;Cavrini, Gulia;Devlin, Nancy;Egmar, Ann-Charlotte;Greiner, Wolfgang;Gusi, Narcis;Herdman, Michael;Jelsma, Jennifer;Kind, Paul;Scalone, Luciana;Ravens-Sieberer, Ulrike

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为年轻受访者开发EQ-5D的自我报告版本,称为EQ-5D-Y(青年);测试儿童和青少年对其的理解能力,并比较使用标准成人EQ-5D和EQ-5D-Y获得的结果。一个国际工作组修订了EQ-5D的内容和措辞,以确保年轻受访者的相关性和清晰度。儿童和青少年对EQ-5D-Y的理解在该工具被翻译成德语、意大利语、西班牙语和瑞典语后进行认知访谈。在德国、西班牙和南非研究了EQ-5D和EQ-5D-Y之间关于报告问题频率的差异。EQ-5D维度的内容被证明是适当的测量HRQOL的年轻受访者。调查表的措辞必须加以调整,这导致一些项目的含义和答案选项发生微小变化。不同国家的儿童和青少年对改编的EQ-5D-Y的理解令人满意。它比EQ-5D更容易被接受,并且被证明更可行。EQ-5D和EQ-5D-Y的管理导致报告问题的频率存在差异。新开发的EQ-5D-Y是一个有用的工具,以测量HRQOL在年轻人的年龄相适应的方式。
To develop a self-report version of the EQ-5D for younger respondents, named the EQ-5D-Y (Youth); to test its comprehensibility for children and adolescents and to compare results obtained using the standard adult EQ-5D and the EQ-5D-Y. An international task force revised the content of EQ-5D and wording to ensure relevance and clarity for young respondents. Children’s and adolescents’ understanding of the EQ-5D-Y was tested in cognitive interviews after the instrument was translated into German, Italian, Spanish and Swedish. Differences between the EQ-5D and the EQ-5D-Y regarding frequencies of reported problems were investigated in Germany, Spain and South Africa. The content of the EQ-5D dimensions proved to be appropriate for the measurement of HRQOL in young respondents. The wording of the questionnaire had to be adapted which led to small changes in the meaning of some items and answer options. The adapted EQ-5D-Y was satisfactorily understood by children and adolescents in different countries. It was better accepted and proved more feasible than the EQ-5D. The administration of the EQ-5D and of the EQ-5D-Y causes differences in frequencies of reported problems. The newly developed EQ-5D-Y is a useful tool to measure HRQOL in young people in an age-appropriate manner.
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