Sexism in the management of bleeding disorders.
Sexism in the management of bleeding disorders.
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DOI：
10.1002/rth2.12468
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发表时间：
2021-01
影响因子：
4.6
通讯作者：
James PD
中科院分区：
文献类型：
--
作者：
Weyand AC;James PD
几个世纪以来，性别歧视一直是出血性疾病的一个问题。患有出血性疾病的女性一直未被充分认识和诊断。那些被诊断出来的人经常会出现诊断延迟的情况，并感觉自己的症状被忽视或最小化。有几个因素导致了这种性别歧视。从历史上看，出血性疾病领域的临床和研究重点一直是男性和血友病。冯·维勒布兰德病是一种长期以来被认为影响女性的疾病，比血友病更为常见，但用于治疗该病的资源却少得多。患者和医疗保健提供者对月经缺乏了解和安慰，这使得问题变得更加复杂，因为月经大量出血是患有出血性疾病的女性最常见的症状之一。由于普遍对经期的污名化，这种缺乏舒适感和知识的情况导致寻求护理的女性越来越少，解决这个问题的医疗保健提供者越来越少，获得应有护理的女性也越来越少。已经取得了进展，许多组织投入资源来改善对这些妇女的护理。路还很长，需要做更多的工作来确保患有出血性疾病的女性得到应有的护理。
Sexism has been an issue in bleeding disorders for centuries. Women with bleeding disorders have been underrecognized and underdiagnosed. Those who are diagnosed often experience delays in diagnosis and feel that their symptoms are dismissed or minimized. Several factors contribute to this sexism. Historically, the clinical and research focus within the bleeding disorder community has been on men and hemophilia. Von Willebrand disease, a disease that has long been recognized as affecting women, is much more common than hemophilia, yet has significantly fewer resources devoted to it. The lack of knowledge and comfort that patients and health care providers have regarding menstruation compounds the issue, as heavy menstrual bleeding is one of the most common symptoms seen in women with bleeding disorders. Stemming from the universal stigmatization of periods, this lack of comfort and knowledge results in fewer women seeking care, fewer health care providers addressing the issue, and fewer women getting the care they deserve. Progress has been made, with many organizations dedicating resources to improving the care of these women. The road is long, and much more work is needed to ensure that women with bleeding disorders receive the care they deserve.
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