'Sick and tired': Patients reported reasons for not participating in clinical psychiatric research.
'Sick and tired': Patients reported reasons for not participating in clinical psychiatric research.
复制标题
DOI：
10.1111/hex.12977
复制
发表时间：
2021-05
期刊：
影响因子：
--
通讯作者：
Ramklint M
中科院分区：
文献类型：
--
作者：
Bixo L;Cunningham JL;Ekselius L;Öster C;Ramklint M
有意义和可推广的研究取决于患者的参与意愿。研究往往不能达到令人满意的代表性。本文旨在调查年轻成年精神病患者不参加研究的原因。基于51名精神病患者（14名男性，35名女性和2名未指明）报告的问卷进行了一项定量横断面研究，这些患者先前拒绝参与正在进行的研究项目。此后，对另外10名患者（5名男性，5名女性）进行定性访谈和随后的内容分析。调查问卷显示，“太累/太病而不能参加”是最常见的障碍。缺乏时间和害怕针头是其他常见的障碍。缺乏信任或对研究价值的信念并不那么令人望而却步。在访谈中，致残性精神症状被证实是不参加的主要原因。确定了几种可能的增加参与的方法，例如简化程序和信息，提供奖励和反馈，以及在提出要求之前建立关系。这项研究是不寻常的，因为它集中在一组年轻人参加精神病门诊诊所，我们知道得很少-那些谁不参与研究。我们的研究结果表明，疲劳和疾病减少了研究参与，并确定了可能促进这一重要群体入学的因素。
Meaningful and generalizable research depends on patients' willingness to participate. Studies often fail to reach satisfactory representativeness. This paper aims to investigate reasons for not participating in research among young adult patients with psychiatric illness. A quantitative cross‐sectional study was performed based on questionnaires reported on by 51 psychiatric patients (14 males, 35 females and two unspecified) who had previously declined participation in an ongoing research project. Thereafter, a qualitative interview with subsequent content analysis was conducted with ten additional patients (five males, five females). The questionnaires indicate being ‘too tired/too sick to participate’ as the most common barrier. Lack of time and fear of needles were other common barriers. Lack of trust or belief in the value of research was less inhibitive. In the interviews, disabling psychiatric symptoms were confirmed as the main reason for not participating. Several potential ways to increase participation were identified, such as simplification of procedures and information as well as providing rewards and feedback, and building relationships before asking. This study is unusual as it focuses on the group of young people attending psychiatry outpatient clinics we know very little about – those who do not partake in research. Our results indicate that fatigue and sickness reduce research participation and identify factors that may facilitate enrolment of this important group.
登录
查看更多内容
影响因子：
2.9
作者：
Almeida, Luis;Kashdan, Todd B.;Soares-da-Silva, Patricio
通讯作者：
Soares-da-Silva, Patricio
影响因子：
2.5
作者：
McDonald, Alison M.;Knight, Rosemary C.;Snowdon, Claire
通讯作者：
Snowdon, Claire
影响因子：
5.9
作者：
Barnes, Maria;Wiles, Nicola;Turner, Katrina
通讯作者：
Turner, Katrina
影响因子：
3.8
作者：
Elo, Satu;Kyngaes, Helvi
通讯作者：
Kyngaes, Helvi
影响因子：
4.2
作者：
Harrison, Jordan M.;Jung, Miyeon;Pressler, Susan J.
通讯作者：
Pressler, Susan J.