Pediatric Palliative Care Parents' Distress, Financial Difficulty, and Child Symptoms.
Pediatric Palliative Care Parents' Distress, Financial Difficulty, and Child Symptoms.
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DOI：
10.1016/j.jpainsymman.2021.08.004
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发表时间：
2022-03
影响因子：
4.7
通讯作者：
PPCRN SHARE Project Group
中科院分区：
文献类型：
--
作者：
Boyden JY;Hill DL;Nye RT;Bona K;Johnston EE;Hinds P;Friebert S;Kang TI;Hays R;Hall M;Wolfe J;Feudtner C;PPCRN SHARE Project Group
患有严重疾病的患者的父母会经历心理困扰，这会影响父母的健康，并可能影响他们照顾孩子的能力。父母心理困扰可能受子女症状负担和家庭经济困难的影响。本研究探讨了父母的心理困扰，父母报告的患者症状，和经济困难之间的关联，寻求确定经济困难和患者症状父母的心理困扰的相对关联。在美国7家儿童医院进行的一项前瞻性队列研究中，纳入了532名儿科姑息治疗患者的601名父母的基线数据的横断面研究。资料包括父母自报的心理困扰和父母报告的儿童症状和家庭经济困难。我们使用普通最小二乘多元回归来检验心理困扰和症状评分之间的关联，心理困扰和经济困难之间的关联，以及经济困难的程度是否改变了心理困扰和症状评分之间的关系。大多数父母有中度至严重的困扰（52%）或严重困扰（17%），并经历了一定程度的经济困难（65%）。虽然儿童的症状评分和家庭经济困难一起解释了更多的方差在父母的心理困扰比任何一个变量单独，父母的痛苦更强烈，并在更大的程度上，与经济困难比单独与症状评分。父母的心理困扰与父母报告的患者症状和经济困难。未来的工作应该纵向研究这些关系，以及是否干预措施，以改善症状管理和改善经济困难，改善父母的结果。
Parents of patients with a serious illness experience psychological distress, which impacts parents’ wellbeing and, potentially, their ability to care for their children. Parent psychological distress may be influenced by children’s symptom burden and by families’ financial difficulty. This study examined the associations among parent psychological distress, parent-reported patient symptoms, and financial difficulty, seeking to determine the relative association of financial difficulty and of patient symptoms to parent psychological distress. Cross-sectional study of baseline data for 601 parents of 532 pediatric palliative care patients enrolled in a prospective cohort study conducted at seven US children’s hospitals. Data included self-reported parent psychological distress and parent report of child’s symptoms and family financial difficulty. We used ordinary least squares multiple regressions to examine the association between psychological distress and symptom score, between psychological distress and financial difficulty, and whether the degree of financial difficulty modified the relationship between psychological distress and symptom score. The majority of parents were moderately to severely distressed (52%) or severely distressed (17%) and experienced some degree of financial difficulty (65%). While children’s symptom scores and family financial difficulty together explained more of the variance in parental psychological distress than either variable alone, parental distress was associated more strongly, and to a larger degree, with financial difficulty than with symptom scores alone. Parent psychological distress was associated with parent-reported patient symptoms and financial difficulty. Future work should examine these relationships longitudinally, and whether interventions to improve symptom management and ameliorate financial difficulties improve parental outcomes.
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影响因子：
45.3
作者：
Kreicbergs, U;Valdimarsdóttir, U;Henter, JI
通讯作者：
Henter, JI
影响因子：
2.4
作者：
Feudtner C;Feinstein JA;Zhong W;Hall M;Dai D
通讯作者：
Dai D
影响因子：
4.4
作者：
Collins, Anna;Burchell, Jodie;Thomas, Kristina
通讯作者：
Thomas, Kristina
影响因子：
--
作者：
Kessler, RC;Barker, PR;Zaslavsky, AM
通讯作者：
Zaslavsky, AM
影响因子：
4.7
作者：
Bona, Kira;Dussel, Veronica;Wolfe, Joanne
通讯作者：
Wolfe, Joanne