Co-designing an Integrated Care Network With People Living With Parkinson's Disease: From Patients' Narratives to Trajectory Analysis.
Co-designing an Integrated Care Network With People Living With Parkinson's Disease: From Patients' Narratives to Trajectory Analysis.
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DOI：
10.1177/10497323211042605
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发表时间：
2021-12
影响因子：
3.2
通讯作者：
Tiago M
中科院分区：
文献类型：
--
作者：
Sylvie G;Farré Coma J;Ota G;Aoife L;Anna S;Johanne S;Tiago M
为帕金森氏病(PD)患者提供的综合护理模式承诺以人为中心满足复杂的护理需求，解决碎片化问题并提高生活质量。我们研究的目的是从患者和护理伙伴的角度共同设计一种支持社会和医疗护理的护理提供模式。在我们共同设计方法的第一步，来自五个国家的参与者被邀请在叙述性采访中分享他们与PD生活在一起的经历。基于科尔宾和施特劳斯模型，对这些叙述性访谈进行了定性分析，以描绘患者的轨迹。确定了三种典型的轨迹：(A)“不可预测”轨迹、(B)“处境”轨迹和(C)“苛刻”轨迹。基于对这些轨迹的分析，我们能够将各种患者的体验整合到一个综合护理网络的设计中。
An integrated care model for people living with Parkinson’s disease (PD) offers the promise of meeting complex care needs in a person-centered way that addresses fragmentation and improves quality of life. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners. In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. A qualitative analysis of these narrative interviews based on the Corbin and Strauss model was done to map out patients’ trajectories. Three typical trajectories were identified: (a) the “unpredictable” trajectory, (b) the “situated” trajectory, and (c) the “demanding” trajectory. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network.
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影响因子：
48
作者：
Bloem, Bastiaan R.;Henderson, Emily J.;Dorsey, E. Ray;Okun, Michael S.;Okubadejo, Njideka;Chan, Piu;Andrejack, John;Darweesh, Sirwan K. L.;Munneke, Marten
通讯作者：
Munneke, Marten
影响因子：
3.5
作者：
Kessler, Dorothy;Hauteclocque, Jennifer;Liddy, Clare
通讯作者：
Liddy, Clare
DOI：
10.1080/15710882.2013.846384
发表时间：
2013-12-01
影响因子：
1.8
作者：
Bowen, Simon;McSeveny, Kerry;Dearden, Andy
通讯作者：
Dearden, Andy
影响因子：
3.8
作者：
Haahr, Anita;Kirkevold, Marit;Ostergaard, Karen
通讯作者：
Ostergaard, Karen
影响因子：
4.1
作者：
Fabbri, Margherita;Caldas, Ana Castro;Ferreira, Joaquim J.
通讯作者：
Ferreira, Joaquim J.