"It's that invisible illness": Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment.

"It's that invisible illness": Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment.
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DOI:
10.1002/pul2.12236
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发表时间:
2023-04
影响因子:
2.6
通讯作者:
Courtright, Katherine R. R.
Courtright, Katherine R. R.
中科院分区:
医学4区
文献类型:
--
作者:
Auriemma, Catherine L. L.;Minhas, Jasleen;Blue, Randi;Lapatra, Tess;Kawut, Steven M. M.;Courtright, Katherine R. R.

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对肺动脉高压(PAH)利益相关者最有意义的结局的了解有限。在这项定性研究中,患者和临床医生支持将个性化的体力活动、症状和心理健康作为评估PAH治疗反应的关键结局,但在PAH临床试验中很少进行常规测量。
Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well‐being as key outcomes to assess PAH treatment response, yet few are routinely measured in PAH clinical trials.
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