Patient journey during and after a pre-eclampsia-complicated pregnancy: a cross-sectional patient registry study.
Patient journey during and after a pre-eclampsia-complicated pregnancy: a cross-sectional patient registry study.
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DOI：
10.1136/bmjopen-2021-057795
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发表时间：
2022-03-03
期刊：
影响因子：
2.9
通讯作者：
Seely EW
中科院分区：
文献类型：
--
作者：
Bijl RC;Bangert SE;Shree R;Brewer AN;Abrenica-Keffer N;Tsigas EZ;Koster MPH;Seely EW
以深入了解先兆子痫合并妊娠的患者旅程。横断面患者登记研究。由先兆子痫基金会发起的在线患者登记。有子痫前期病史的妇女在先兆子痫登记处(TPR)登记。回顾患者报告的经验措施，涉及对先兆子痫的认识、收到关于先兆子痫的信息的时间和类型、参与有关医疗护理的决策、先兆子痫合并妊娠的精神/情感影响以及对未来妊娠计划的影响。在被邀请完成患者旅程问卷的3618名TPR参与者中，833名(23%)应答者的数据可用于分析。大多数应答者是白人(n=795，95.4%)，居住在美国(n=728，87.4%)。在诊断为先兆子痫之前，599名(73.9%)的应答者知道‘先兆子痫’这个术语，但只有348名(43.7%)的应答者知道与其相关的症状。受教育程度较低的女性听说过先兆子痫的可能性较小(OR0.36，95% CI为0.21至0.62)。在诊断时，29.2%的应答者没有感觉到参与决策，这与报告先兆子痫经历对精神/情感的严重影响有关(OR 2.46，95% 可信区间1.58至3.84)。随着时间的推移，知道先兆子痫症状的女性比例有所增加(2011年之前为32.2%，2016年之后为52.5%；p<；0.001)，表示接受过与先兆子痫相关的晚年健康风险咨询的应答者比例也有所增加(2011年之前为14.2%，2016年之后为25.6%；p=0.005)。这项研究表明，需要改善关于先兆子痫的患者教育，共同的决策对患者提高他们的医疗体验非常重要，医疗保健提供者应该努力定期纳入与先兆子痫相关的晚年健康风险的咨询。NCT02020174。
To gain insight into the patient journey through a pre-eclampsia-complicated pregnancy. Cross-sectional patient registry study. Online patient registry initiated by the Preeclampsia Foundation. Women with a history of pre-eclampsia enrolled in The Preeclampsia Registry (TPR). Retrospective patient-reported experience measures concerning awareness of pre-eclampsia, timing and type of information on pre-eclampsia received, involvement in decision making regarding medical care, mental/emotional impact of the pre-eclampsia-complicated pregnancy and impact on future pregnancy planning. Of 3618 TPR-participants invited to complete the Patient Journey questionnaire, data from 833 (23%) responders were available for analysis. Most responders were white (n=795, 95.4%) and lived in the USA (n=728, 87.4%). Before their pre-eclampsia diagnosis, 599 (73.9%) responders were aware of the term ‘pre-eclampsia’, but only 348 (43.7%) were aware of its associated symptoms. Women with a lower level of education were less likely to have heard of pre-eclampsia (OR 0.36, 95% CI 0.21 to 0.62). Around the time of diagnosis, 29.2% of responders did not feel involved in the decision making, which was associated with reporting a serious mental/emotional impact of the pre-eclampsia experience (OR 2.46, 95% CI 1.58 to 3.84). Over time, there was an increase in the proportion of women who were aware of the symptoms of pre-eclampsia (32.2% before 2011 to 52.5% after 2016; p<0.001) and in the proportion of responders stating they received counselling about the later-life health risks associated with pre-eclampsia (14.2% before 2011 to 25.6% after 2016; p=0.005). This study demonstrates that improved patient education regarding pre-eclampsia is needed, that shared decision making is of great importance to patients to enhance their healthcare experience, and that healthcare providers should make efforts to routinely incorporate counselling about the later-life health risks associated with pre-eclampsia. NCT02020174.
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影响因子：
2.3
作者：
Celi, Ann C.;Seely, Ellen W.;Wilkins-Haug, Louise E.
通讯作者：
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影响因子：
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作者：
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DOI：
10.1136/bmj.f6564
发表时间：
2013-11-07
期刊：
BMJ (Clinical research ed.)
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通讯作者：
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通讯作者：
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影响因子：
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