Mental health challenges during COVID-19: perspectives from parents with children with neurodevelopmental disabilities.

Mental health challenges during COVID-19: perspectives from parents with children with neurodevelopmental disabilities.
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DOI:
10.1080/17482631.2022.2136090
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发表时间:
2022-12
影响因子:
1.8
通讯作者:
Zwicker, Jennifer
Zwicker, Jennifer
中科院分区:
医学4区
文献类型:
--
作者:
Currie, Genevieve;Finlay, Brittany;Seth, Ashish;Roth, Christiane;Elsabbagh, Myada;Hudon, Anne;Hunt, Matthew;Jodoin, Sebastien;Lach, Lucyna;Lencucha, Raphael;Nicholas, David B.;Shakako, Keiko;Zwicker, Jennifer

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全球大流行以及随后对基本日常活动的否认、延误和中断给患有神经发育障碍(NDDS)的儿童及其父母带来了重大挑战。新冠肺炎大流行期间的公共卫生限制限制了患有非传染性疾病的儿童获得维持其健康和福祉所需的支持和服务的机会。这项研究试图从有患有非传染性疾病儿童的父母的角度来了解这些公共卫生措施和限制对精神健康的影响,以便为满足这一群体需求的公共卫生政策提供参考。采用解释性描述性设计指导数据收集和数据分析。40名护理者接受了采访,了解他们在大流行限制方面的经验。一般性政策措施造成了家庭社会支助系统的许多空白,并对儿童及其父母的心理健康构成了挑战。出现了四个主题:1)缺乏社会网络和活动,2)缺乏获得保健和社会支持的机会,3)家庭单位的紧张关系,以及4)对儿童及其父母心理健康的影响。应急准备计划要求采取包容残疾的办法,为家庭和社区的家庭支助分配资源。家属确定了支持,以最大限度地减少进一步的大流行中断和加强恢复。
The global pandemic and subsequent denials, delays, and disruptions in essential daily activities created significant challenges for children with neurodevelopmental disorders (NDDs) and their parents. Public health restrictions during the COVID-19 pandemic limited access to supports and services required by children with NDDs to maintain their health and well-being. This study sought to understand the impacts of these public health measures and restrictions on mental health from the perspective of parents with children with NDDs to inform pathways for public health policies responsive to the needs of this population. Interpretive descriptive design was used to guide data collection and data analysis. Forty caregivers were interviewed about their experience with pandemic restrictions. Generic policy measures contributed to many gaps in families’ social support systems and contributed to mental health challenges for children and their parents. Four themes emerged: 1) lack of social networks and activities, 2) lack of access to health and social supports, 3) tension in the family unit, and 4) impact on mental health for children and their parents. Emergency preparedness planning requires a disability inclusive approach allocating resources for family supports in the home and community. Families identified supports to minimize further pandemic disruptions and enhance recovery.
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