Development of Written Materials for Participants in an Alzheimer's Disease and Related Dementias Screening Trial.
Development of Written Materials for Participants in an Alzheimer's Disease and Related Dementias Screening Trial.
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DOI：
10.1177/23743735221092573
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发表时间：
2022
影响因子：
1.5
通讯作者：
Fowler, Nicole R.
中科院分区：
文献类型：
--
作者：
Head, Katharine J.;Hartsock, Jane A.;Bakas, Tamilyn;Boustani, Malaz A.;Schroeder, Matthew;Fowler, Nicole R.
关键词：
鉴于参与者在临床试验中的经历包括与临床试验人员的各种沟通接触点，这些沟通应该以一种方式来设计，通过关注能力、自主性和关联性的自我决定理论概念来增强参与者的体验。在这篇专题文章中，我们认为临床试验团队需要考虑如何设计他们的书面参与者交流材料的重要性，我们详细解释了我们的多学科团队为我们的阿尔茨海默病和相关痴呆(ADRD)筛查试验的患者和家庭照顾者设计书面材料的过程。本文最后为其他临床试验团队提供了建议的指导和步骤。
Given that participants’ experiences in clinical trials include a variety of communication touchpoints with clinical trial staff, these communications should be designed in a way that enhances the participant experience by paying attention to the self-determination theoretical concepts of competence, autonomy, and relatedness. In this feature, we argue that clinical trial teams need to consider the importance of how they design their written participant communication materials, and we explain in detail the process our multidisciplinary team took to design written materials for the patient and family caregiver participants in our Alzheimer's disease and related dementias (ADRD) screening trial. This article concludes with suggested guidance and steps for other clinical trial teams.
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