What should autism research focus upon? Community views and priorities from the United Kingdom.
What should autism research focus upon? Community views and priorities from the United Kingdom.
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DOI：
10.1177/1362361314529627
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发表时间：
2014-10
期刊：
影响因子：
--
通讯作者：
Charman T
中科院分区：
文献类型：
--
作者：
Pellicano E;Dinsmore A;Charman T
伴随着自闭症患病率的上升，国际上出现了许多新的研究和研究投资。这项研究试图确定目前英国自闭症研究资金的模式是否与自闭症社区的担忧有关。对自闭症成年人、家庭成员、从业者和研究人员进行了访谈和焦点小组，以确定他们研究的优先事项。我们还通过在线调查收集了大量利益相关者的观点。联合王国为自闭症研究提供资金的模式与大多数与会者所阐述的优先事项之间存在明显的差距。人们普遍认为，未来自闭症研究的重点应该放在那些对人们日常生活产生影响的领域。自闭症社区需要更多地参与优先事项的制定和更广泛的研究，以确保资源到达最需要的地方，并能够产生最大的影响。
The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research. We also captured the views of a large number of stakeholders via an online survey. There was a clear disparity between the United Kingdom’s pattern of funding for autism research and the priorities articulated by the majority of participants. There was general consensus that future priorities for autism research should lie in those areas that make a difference to people’s day-to-day lives. There needs to be greater involvement of the autism community both in priority setting and in research more broadly to ensure that resources reach where they are most needed and can make the most impact.
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影响因子：
2.4
作者：
Jones, Sandra C.;Harwood, Valerie
通讯作者：
Harwood, Valerie
影响因子：
158.5
作者：
Gross, CP;Anderson, GF;Rowe, NR
通讯作者：
Rowe, NR
影响因子：
5.2
作者：
Knapp, Martin;Romeo, Renee;Beecham, Jennifer
通讯作者：
Beecham, Jennifer
DOI：
10.1111/j.1469-7610.2004.00215.x
发表时间：
2004-02-01
影响因子：
7.6
作者：
Howlin, P;Goode, S;Rutter, M
通讯作者：
Rutter, M
影响因子：
8.8
作者：
Corner, J.;Wright, D.;Foster, C.
通讯作者：
Foster, C.