Investigating mental health service user views of stigma on Twitter during COVID-19: a mixed-methods study.
Investigating mental health service user views of stigma on Twitter during COVID-19: a mixed-methods study.
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DOI：
10.1080/09638237.2022.2091763
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发表时间：
2022-08
影响因子：
3.3
通讯作者：
Jilka, Sagar
中科院分区：
文献类型：
--
作者：
Jansli, Sonja M.;Hudson, Georgie;Negbenose, Esther;Erturk, Sinan;Wykes, Til;Jilka, Sagar
背景：社交媒体上的心理健康污名已经得到了很好的研究，但不是从心理健康服务使用者的角度。冠状病毒病-19 （COVID-19）增加了对心理健康的讨论，并可能影响了耻辱感。目的：(1)了解服务使用者如何感知和定义社交媒体上的心理健康污名；(2) COVID-19如何影响心理健康对话和社交媒体使用。方法：我们收集了2700条与七种心理健康状况相关的推文：精神分裂症、抑郁、焦虑、自闭症、饮食失调、强迫症和成瘾。27名服务使用者将其评为侮辱或中立，然后进行焦点小组讨论。对焦点小组记录进行主题分析。结果：参与者将1101条推文（40.8%）评为侮辱。与精神分裂症相关的推文最常被归类为侮辱（411/534,77%）。与抑郁或焦虑相关的推文最不容易被污名化（139/634,21.9%）。污名化的推文取决于感知到的意图和语境，但有些词（如“psycho”）与语境无关，都会让人感到污名化。讨论：社交媒体的匿名性似乎增加了耻辱，但COVID-19封锁提高了心理健康素养。这是第一个定性调查服务用户对Twitter上各种心理健康状况的耻辱看法的研究，我们表明耻辱是常见的，特别是对精神分裂症。在设计污名化解决方案时，服务使用者的参与至关重要。
Background: Mental health stigma on social media is well studied, but not from the perspective of mental health service users. Coronavirus disease-19 (COVID-19) increased mental health discussions and may have impacted stigma. Objectives: (1) to understand how service users perceive and define mental health stigma on social media; (2) how COVID-19 shaped mental health conversations and social media use. Methods: We collected 2,700 tweets related to seven mental health conditions: schizophrenia, depression, anxiety, autism, eating disorders, OCD, and addiction. Twenty-seven service users rated them as stigmatising or neutral, followed by focus group discussions. Focus group transcripts were thematically analysed. Results: Participants rated 1,101 tweets (40.8%) as stigmatising. Tweets related to schizophrenia were most frequently classed as stigmatising (411/534, 77%). Tweets related to depression or anxiety were least stigmatising (139/634, 21.9%). A stigmatising tweet depended on perceived intention and context but some words (e.g. “psycho”) felt stigmatising irrespective of context. Discussion: The anonymity of social media seemingly increased stigma, but COVID-19 lockdowns improved mental health literacy. This is the first study to qualitatively investigate service users' views of stigma towards various mental health conditions on Twitter and we show stigma is common, particularly towards schizophrenia. Service user involvement is vital when designing solutions to stigma.
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