The feasibility of using ecological momentary assessment to understand urinary and fecal incontinence experiences in adults with spina bifida: A 30-day study.
The feasibility of using ecological momentary assessment to understand urinary and fecal incontinence experiences in adults with spina bifida: A 30-day study.
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DOI：
10.1371/journal.pone.0292735
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发表时间：
2023
期刊：
影响因子：
3.7
通讯作者：
中科院分区：
文献类型：
--
作者：
在本文中，我们评估的可行性，使用生态瞬时评估（EMA），以了解尿（UI）和粪便（FI）失禁的成人脊柱裂（SB）。作为一项更大的30天前瞻性研究的一部分，以了解SB成人（N = 89）的尿失禁，参与者完成了一天结束时的EMA日记，评估UI和FI的频率和背景。我们使用这些数据在六个维度上评估方法的可行性：（a）依从性，或与研究方案一致且基本完整的数据输入;（B）反应性，或归因于研究参与的行为变化;（c）参与者可接受性，或有利于依从性的方法的便利性和易用性;（d）数据捕获，或收集的失禁行为量;（e）失禁报告的准确性;以及f）参与者为未来研究提供的反馈。参与者高度遵守日记录入方案和时间表：提交了预期每日总条目的95.7%（2576/2700）。平均完成时间为2分钟。无论是提交的总数还是完成时间都不会因人口统计学特征或健康史而变化。采集了足够量的尿失禁和情感结局，随着时间的推移，UI和情感的报告呈小幅下降趋势。退出调查回忆与日记报告高度相关。参与者认为方法是可以接受的，诚实地报告了他们的经验，喜欢并感到舒适地参与研究，并将在未来从事类似的研究。关于UI和FI的日常背景的准确信息是依赖于此信息的干预或教育计划成功的关键因素。我们的研究结果表明，EMA是一种可行的方法来描述UI和FI在成人SB。
In this paper, we evaluate the feasibility of using ecological momentary assessment (EMA) to understand urinary (UI) and fecal (FI) incontinence in adults with spina bifida (SB). As part of a larger 30-day prospective study to understand the incontinence in adults with SB (N = 89), participants completed end-of-day EMA diaries assessing the frequency and context of UI and FI. We used these data to assess the method feasibility across six dimensions: (a) compliance, or data entry which is consistent with study protocol and substantially complete; (b) reactivity, or behavior change attributed to study participation; (c) participant acceptability, or convenience and ease of method beneficial to compliance; (d) data capture, or the volume of incontinence behaviors collected; (e) the accuracy of incontinence reports; and f) participant-provided feedback for future studies. Participants were highly compliant with diary entry protocol and schedule: submitting 95.7% (2576/2700) of the expected total daily entries. The average completion time was two minutes. Neither the total number of submissions nor the completion time varied by demographic characteristics or health history. A sufficient volume of incontinence and affective outcomes were captured, with small downtrends in reporting of UI and affect over time. Exit survey recall was highly correlated with diary reports. Participants found the methodology to be acceptable, reported their experiences honestly, enjoyed and felt comfortable participating in the study and would engage in similar study in the future. Accurate information about the daily context of UI and FI is a key factor in the success of intervention or education programs relying on this information. Our findings demonstrate that EMA is a feasible way to describe UI and FI in adults with SB.
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DOI：
10.1097/phm.0b013e3181aa41d4
发表时间：
2009-07-01
影响因子：
3
作者：
Dicianno, Brad E.;Gaines, Anna;Lee, Shannon
通讯作者：
Lee, Shannon
影响因子：
7.6
作者：
Hensel, Devon J.;Fortenberry, J. Dennis
通讯作者：
Fortenberry, J. Dennis
影响因子：
3.2
作者：
Castaneda, Heide;Melo, Milena Andrea
通讯作者：
Melo, Milena Andrea
影响因子：
6.6
作者：
Granholm, Eric;Holden, Jason L.;Harvey, Philip D.
通讯作者：
Harvey, Philip D.
影响因子：
3.6
作者：
Hensel, Devon J.;Von Hippel, Christiana D.;Perkins, Robert H.
通讯作者：
Perkins, Robert H.