Best Practices for Engaging Pregnant and Postpartum Women at Risk of Substance Use in Longitudinal Research Studies: a Qualitative Examination of Participant Preferences.
Best Practices for Engaging Pregnant and Postpartum Women at Risk of Substance Use in Longitudinal Research Studies: a Qualitative Examination of Participant Preferences.
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DOI：
10.1007/s42844-020-00019-1
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发表时间：
2020
期刊：
影响因子：
--
通讯作者：
Croff JM
中科院分区：
文献类型：
--
作者：
Beasley LO;Ciciolla L;Jespersen JE;Chiaf AL;Schmidt M;Shreffler KM;Breslin FJ;Bakhireva LN;Sanjuan PM;Stephen JM;Coles CD;Chambers CD;Kable JA;Leeman L;Singer LT;Zellner J;Morris AS;Croff JM
在接触被认为是高风险的孕妇和产后妇女方面存在重大障碍（例如，那些经历物质使用和/或物质使用障碍（SUD））的纵向研究。为了提高招募和保留这一人群的研究从产前到童年中期，必须确定如何提高关键的研究参与因素。目前的手稿使用定性方法来确定与招募，登记和保留高危孕妇和产后妇女相关的重要因素。目前的样本包括41名参加焦点小组或个人访谈的高危妇女。所有的采访进行了分析，以确定广泛的主题，从事高风险的孕妇和育儿妇女在一个为期10年的纵向研究项目。主题被组织成与以下相关的关键参与因素：（1）招募策略，（2）入学，（3）在纵向研究中保留高危孕妇和育儿妇女。结果表明，招聘策略与理想的招聘地点，材料，谁应该与高风险参与者分享研究信息。与入学相关，披露的关键领域集中在入学决策，加入研究项目的兴趣因素，以及加入纵向研究的障碍。关于保留，主题集中在继续研究所需的支持，继续研究的障碍，以及与高风险参与者保持联系的最佳方式。总体而言，当前的定性数据提供了初步数据，增强了对影响高危孕妇和产后妇女参与纵向研究的一系列因素的了解，当前的结果表明需要优先考虑招募、登记和保留策略，以有效地吸引弱势群体参与研究。
There are significant barriers in engaging pregnant and postpartum women that are considered high-risk (e.g., those experiencing substance use and/or substance use disorders (SUD)) into longitudinal research studies. To improve recruitment and retention of this population in studies spanning from the prenatal period to middle childhood, it is imperative to determine ways to improve key research engagement factors. The current manuscript uses a qualitative approach to determine important factors related to recruiting, enrolling, and retaining high-risk pregnant and postpartum women. The current sample included 41 high-risk women who participated in focus groups or individual interviews. All interviews were analyzed to identify broad themes related to engaging high-risk pregnant and parenting women in a 10-year longitudinal research project. Themes were organized into key engagement factors related to the following: (1) recruitment strategies, (2) enrollment, and (3) retention of high-risk pregnant and parenting women in longitudinal research studies. Results indicated recruitment strategies related to ideal recruitment locations, material, and who should share research study information with high-risk participants. Related to enrollment, key areas disclosed focused on enrollment decision-making, factors that create interest in joining a research project, and barriers to joining a longitudinal research study. With regard to retention, themes focused on supports needed to stay in research, barriers to staying in research, and best ways to stay in contact with high-risk participants. Overall, the current qualitative data provide preliminary data that enhance the understanding of a continuum of factors that impact engagement of high-risk pregnant and postpartum women in longitudinal research with current results indicating the need to prioritize recruitment, enrollment, and retention strategies in order to effectively engage vulnerable populations in research.
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