Parents' Experiences of the First Year at Home with an Infant Born Extremely Preterm with and without Post-Discharge Intervention: Ambivalence, Loneliness, and Relationship Impact.
Parents' Experiences of the First Year at Home with an Infant Born Extremely Preterm with and without Post-Discharge Intervention: Ambivalence, Loneliness, and Relationship Impact.
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DOI：
10.3390/ijerph17249326
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发表时间：
2020-12-13
影响因子：
--
通讯作者：
Ådén U
中科院分区：
文献类型：
--
作者：
Baraldi E;Allodi MW;Smedler AC;Westrup B;Löwing K;Ådén U
随着极早产儿（EPT）存活率的提高，妊娠28周前，这些家庭的出院后生活已经获得了显着的研究兴趣。对父母出院后经历的定量研究以前曾报道过父母中抑郁症状、创伤后应激障碍和焦虑水平升高。目前的调查旨在定性探讨的情况下，在瑞典出生的EPT儿童的父母在家里的第一年。半结构化的采访进行了17个父母的14名儿童出生EPT，8名父母来自早期干预组和9名父母从一组接受治疗，如往常一样，延长随访程序。使用主题分析方法确定了三个主要主题：与儿童有关的问题，父母的内心状态，改变家庭动态。干预组的家长也表达了与干预有关的主题，如安全感和知识渊博的干预者。结果进行了讨论，在不同的概念，健康，亲子互动和附件，和模型的恢复过程。总之，父母描述的第一年在家里作为一个长期的父母担心孩子的时间，以及对父母自己的情绪状态的关注。
With increasing survival rates of children born extremely preterm (EPT), before gestational week 28, the post-discharge life of these families has gained significant research interest. Quantitative studies of parental experiences post-discharge have previously reported elevated levels depressive symptoms, posttraumatic stress-disorder and anxiety among the parents. The current investigation aims to qualitatively explore the situation for parents of children born EPT in Sweden during the first year at home. Semi-structured interviews were performed with 17 parents of 14 children born EPT; eight parents were from an early intervention group and nine parents from a group that received treatment as usual, with extended follow-up procedures. Three main themes were identified using a thematic analytic approach: child-related concerns, the inner state of the parent, and changed family dynamics. Parents in the intervention group also expressed themes related to the intervention, as a sense of security and knowledgeable interventionists. The results are discussed in relation to different concepts of health, parent–child interaction and attachment, and models of the recovery processes. In conclusion, parents describe the first year at home as a time of prolonged parental worries for the child as well as concerns regarding the parent’s own emotional state.
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DOI：
10.1177/140349489001800209
发表时间：
1990-01-01
期刊：
SCANDINAVIAN JOURNAL OF SOCIAL MEDICINE
影响因子：
--
作者：
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通讯作者：
KALLEN, B
影响因子：
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影响因子：
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作者：
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通讯作者：
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DOI：
10.1016/j.cppeds.2015.12.011
发表时间：
2016-04-01
影响因子：
1.6
作者：
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通讯作者：
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影响因子：
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作者：
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