Feasibility and Acceptability of Digital Legacy-Making: An Innovative Story-Telling Intervention for Adults With Cancer.
Feasibility and Acceptability of Digital Legacy-Making: An Innovative Story-Telling Intervention for Adults With Cancer.
复制标题
DOI：
10.1177/1049909120971569
复制
发表时间：
2021-07
期刊：
影响因子：
--
通讯作者：
Wachholtz A
中科院分区：
文献类型：
--
作者：
DeSanto-Madeya S;Tjia J;Fitch C;Wachholtz A
本研究探讨了在成年癌症患者中进行遗产干预的可行性、负担和可接受性，以及对患者生活质量（QOL）指标的初步影响。我们进行了一项IB阶段的试点干预研究。干预是对晚期癌症成年人进行数字视频遗产制作访谈，以创建他们记忆和经历的数字视频。基线和视频后QOL评估包括：癌症治疗功能评估-一般（FACT-G）、患者尊严量表（PDI）、医院焦虑和抑郁量表（HADS）以及用于苦恼、焦虑、愤怒、帮助和抑郁的情绪温度计。参与者收到了数字视频的最终副本，以便分发给他们的家人。年龄在38-83岁之间、患有晚期或限制生命的癌症诊断的成年人（n = 16）完成了干预。可行性和可接受性很强，磨损率为0%。虽然初步研究没有定量意义，但参与者的总或子量表FACT-G评分、PDI、HADS焦虑或抑郁评分和情绪温度计评分从基线到干预后发生了变化。数字视频遗产制作干预对成年癌症患者是可行的，对完成研究的个人没有显著的负面结果。目前尚不清楚这种干预是否有助于积极的生活质量结果。
This study examined the feasibility, burden and acceptability of a legacy-making intervention in adults with cancer and preliminary effects on patient quality-of-life (QOL) measures. We conducted a Stage IB pilot, intervention study. The intervention was a digital video legacy-making interview of adults with advanced cancer to create a digital video of their memories and experiences. Baseline and post-video QOL assessments included: Functional Assessment of Cancer Therapy—General (FACT-G), Patient Dignity Inventory (PDI), Hospital Anxiety and Depression Scale (HADS), and Emotional Thermometers for distress, anxiety, anger, help and depression. Participants received a final copy of the digital video for distribution to their families. Adults (n = 16) ages 38-83 years old with an advanced or life-limiting cancer diagnosis completed an intervention. Feasibility and acceptability was strong with 0% attrition. While the pilot study was not powered for quantitative significance, there were changes from baseline to post-intervention in the participants’ total or subscale FACT-G scores, PDI, HADS anxiety or depression scores, and Emotional Thermometer scores. A digital video legacy-making intervention is feasible for adults with cancer without significant negative outcomes for individuals completing the study. It remains unclear whether this intervention contributes to positive quality of life outcomes.
登录
查看更多内容
影响因子：
5.4
作者：
Chochinov, HM;Hack, T;Harlos, M
通讯作者：
Harlos, M
影响因子：
3.1
作者：
Fischer, Ian C.;Cripe, Larry D.;Rand, Kevin L.
通讯作者：
Rand, Kevin L.
影响因子：
4.7
作者：
Chochinov, Harvey Max;Hassard, Thomas;Murray, Alison
通讯作者：
Murray, Alison
影响因子：
3.6
作者：
Hall, Sue;Goddard, Cassie;Speck, Peter
通讯作者：
Speck, Peter
影响因子：
3.6
作者：
Mitchell, Alex J.;Baker-Glenn, Elena A.;Symonds, Paul
通讯作者：
Symonds, Paul