Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals.
Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals.
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DOI：
10.3390/jcm10091833
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发表时间：
2021-04-22
影响因子：
3.9
通讯作者：
Husson O
中科院分区：
文献类型：
--
作者：
Kaal SEJ;Lidington EK;Prins JB;Jansen R;Manten-Horst E;Servaes P;van der Graaf WTA;Husson O
本研究旨在找出与青少年及青壮年(Aya)癌症患者相关的健康相关生活质量(HRQOL)问题，卫生保健专业人员(HCP)普遍对AYA相关的HRQL问题的认知，以及AYA和HCP确定的问题之间的差异。受试者为确诊癌症时年龄在18-35岁的荷兰AYA(N=83)和参与AYA肿瘤学的HPC(N=34)，填写癌症幸存者生活质量问卷。癌症患者对疲劳、食欲、疼痛、便秘、睡眠障碍、恶心和神经病变等身体症状的评分明显高于癌症患者(即问题更多)。Aya癌症患者对总体身体健康和生活质量、幸福感、满足感、有用性和来自他人的支持的评分，都是积极的问题，显著高于(即，更积极的)HCP。对AYA评分最高的问题(负面和正面合计)是：感受到他人的支持、对最初癌症诊断的痛苦、对家庭的痛苦和总体生活质量。初级卫生保健方案认为，诊断、治疗、家庭和疾病对就业/学习的干扰是AYA最成问题的问题(都是否定的)。在患者和HCP列出的十个最常见的问题中，有五个是相同的。男性AYA、有治疗意图的患者和有伴侣的患者的HRQOL问题评分高于他们的同龄人。患者和初级保健计划之间的差异说明了患者参与组织生理和心理社会护理的重要性。
This study aimed to identify health-related quality of life (HRQoL) issues of relevance for adolescent and young adult (AYA) cancer patients, the perception of relevant HRQoL issues for AYA in generalby the health care professionals (HCP), and discrepancies between issues identified by AYAs and HCP. Dutch AYAs aged 18–35 years at the time of cancer diagnosis (N = 83) and HCPs (N = 34) involved in AYA oncology were invited to complete the Quality of Life for Cancer Survivors questionnaire. HCPs rated physical symptoms such as fatigue, appetite, pain, constipation, sleep disorders, nausea and neuropathy among AYA cancer patients significantly higher (i.e., more problems) than AYA cancer patients. AYA cancer patients rated overall physical health and quality of life, happiness, satisfaction, usefulness and support from others, all positively formulated questions, significantly higher (i.e., more positive) than HCPs. The most highly rated issues (negative and positive combined) for AYAs were: perceived support from others, distress about initial cancer diagnosis, distress for family and overall quality of life. HCPs identified distress about diagnosis, treatment, family and interference of illness with employment/study as the most problematic issues (all negative) for AYAs. Five of the ten most common issues listed by patients and HCPs were the same. Male AYAs, patients treated with curative intent and those with a partner rated positive HRQoL issues higher than their counterparts. The discrepancy between the perception of patients and HCPs illustrates the importance of patient involvement in organizing physical and psychosocial care.
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影响因子：
6.2
作者：
Salsman JM;Danhauer SC;Moore JB;Canzona MR;Victorson DE;Zebrack BJ;Reeve BB
通讯作者：
Reeve BB
影响因子：
3.1
作者：
Husson, Olga;Prins, Judith B.;van de Poll-Franse, Lonneke V.
通讯作者：
van de Poll-Franse, Lonneke V.
特殊人群的性问题：青少年和年轻人。
影响因子：
2.2
作者：
Bolte, Sage;Zebrack, Brad
通讯作者：
Zebrack, Brad
DOI：
10.1007/s00520-017-3707-7
发表时间：
2017-09
期刊：
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
影响因子：
--
作者：
Husson O;Zebrack B;Block R;Embry L;Aguilar C;Hayes-Lattin B;Cole S
通讯作者：
Cole S
影响因子：
3.4
作者：
Goldzweig, Gil;Abramovitch, Amitai;Baider, Lea
通讯作者：
Baider, Lea