Research ethics in context: understanding the vulnerabilities, agency and resourcefulness of research participants living along the Thai-Myanmar border.
Research ethics in context: understanding the vulnerabilities, agency and resourcefulness of research participants living along the Thai-Myanmar border.
复制标题
DOI：
10.1093/inthealth/ihaa052
复制
发表时间：
2020-11-09
影响因子：
2.5
通讯作者：
Cheah PY
中科院分区：
文献类型：
--
作者：
Khirikoekkong N;Jatupornpimol N;Nosten S;Asarath SA;Hanboonkunupakarn B;McGready R;Nosten F;Roest J;Parker M;Kelley M;Cheah PY
研究伦理准则对与弱势群体开展研究设定了很高的标准，往往导致他们被排除在有益的研究之外。我们的研究旨在更好地了解参与者的脆弱性，代理，足智多谋和支持来源。我们围绕两项涉及居住在泰缅边境沿着的移民妇女的临床研究进行了定性研究。我们与研究参与者、家庭、研究人员和关键知情人进行了32次深入访谈和10次焦点小组讨论。我们发现，“无证”是许多结构性脆弱性的核心，反映了政治，经济，社会和健康需求。虽然移徙妇女的生活充满挑战，但她们有一个支持网络，其中包括家庭、雇主、社区领袖、非政府组织和研究网络。移民妇女选择参加研究，以获得高质量的医疗保健，获得知识和获得额外的钱。然而，研究有可能加剧现有的脆弱性，例如跨境旅行的负担、放弃工作和作为移民更加引人注目。我们的研究证实，研究对于提供循证护理很重要，参与者认为研究提供了许多好处，但也有隐藏的负担。移民妇女在应对生活和参与研究方面的挑战时发挥了能动性和足智多谋。
Research ethics guidelines set a high bar for conducting research with vulnerable populations, often resulting in their exclusion from beneficial research. Our study aims to better characterise participants’ vulnerabilities, agency, resourcefulness and sources of support. We undertook qualitative research around two clinical studies involving migrant women living along the Thai–Myanmar border. We conducted 32 in-depth interviews and 10 focus group discussions with research participants, families, researchers and key informants. We found that being ‘undocumented’ is at the core of many structural vulnerabilities, reflecting political, economic, social and health needs. Although migrant women lead challenging lives, they have a support network that includes family, employers, community leaders, non-governmental organisations and research networks. Migrant women choose to participate in research to access quality healthcare, gain knowledge and obtain extra money. However, research has the potential to exacerbate existing vulnerabilities, such as the burdens of cross-border travel, foregoing work and being more visible as migrants. Our study confirms that research is important to provide evidence-based care and was viewed by participants as offering many benefits, but it also has hidden burdens. Migrant women exercised agency and resourcefulness when navigating challenges in their lives and research participation.
登录
查看更多内容
影响因子：
2.1
作者：
Pratt B;Zion D;Lwin KM;Cheah PY;Nosten F;Loff B
通讯作者：
Loff B
影响因子：
5.2
作者：
Cheah PY;Parker M
通讯作者：
Parker M
影响因子：
15.8
作者：
Carrara VI;Lwin KM;Phyo AP;Ashley E;Wiladphaingern J;Sriprawat K;Rijken M;Boel M;McGready R;Proux S;Chu C;Singhasivanon P;White N;Nosten F
通讯作者：
Nosten F
影响因子：
2.5
作者：
Cheah PY;Parker M;Dondorp AM
通讯作者：
Dondorp AM
高度边缘化妇女代理权的概念化： 极端环境下的亲密伴侣暴力
影响因子：
3.3
作者：
Campbell, Catherine;Mannell, Jenevieve
通讯作者：
Mannell, Jenevieve