Development of an eHealth Program for Parents of Adolescents With Type 1 Diabetes.
Development of an eHealth Program for Parents of Adolescents With Type 1 Diabetes.
复制标题
DOI：
10.1177/0145721717748606
复制
发表时间：
2018-03
期刊：
影响因子：
--
通讯作者：
Marceau LD
中科院分区：
文献类型：
--
作者：
Whittemore R;Zincavage RM;Jaser SS;Grey M;Coleman JL;Collett D;Delvy R;Basile Ibrahim B;Marceau LD
本研究的目的是了解养育1型糖尿病青少年（T1DM）的经验；为患有1型糖尿病青少年的父母开发一个电子保健方案的原型；并从家长和卫生保健提供者的角度评价原型内容和可接受性。采用多阶段方法，在多个时间点生成定性和定量数据。有27名12-18岁T1DM青少年的父母和16名卫生保健提供者参加了半结构化访谈，以确定父母的挑战；53名家长和27名提供者对原型进行了评估。访谈记录分析采用主题内容分析，调查数据汇总采用描述性统计。青少年T1DM父母面临的挑战包括：了解影响青少年糖尿病护理的发育和激素变化，感受青少年独立与父母控制之间的紧张关系，不唠叨或冲突的沟通，安全地转移糖尿病护理责任，处理压力和痛苦的感觉，以及感知缺乏T1DM护理资源和个人时间不足。在原型评估中，家长和提供者都发现了相关的内容，并提供了反馈，以指导整个计划的发展。青少年糖尿病患者的父母和医疗服务提供者表示，在将糖尿病护理从家长转移到青少年的过程中，父母需要得到更多的支持。电子健康计划提供了解决这些需求的理想方式，最终可以与电子医疗记录联系起来，提高这一人群医疗保健的质量和效率。
The purpose of this study was to understand the experience of parenting an adolescent with type 1 diabetes (T1DM); to develop a prototype of an eHealth program for parents of adolescents with T1DM; and to evaluate the prototype content and acceptability from the perspective of parents and health care providers. A multi-phase method was used generating both qualitative and quantitative data at multiple time points. There were 27 parents of adolescents age 12–18 with T1DM and 16 health care providers who participated in semi-structured interviews to identify parental challenges; 53 parents and 27 providers evaluated the prototype. Thematic content analysis was used to analyze interview transcripts and descriptive statistics were used to summarize survey data. Challenges experienced by parents of adolescents with T1DM included: understanding the developmental and hormonal changes of adolescence that affect diabetes care, feeling tension between adolescent independence and parent control, communicating without nagging or conflict, transferring diabetes care responsibility safely, dealing with feelings of stress and distress, and perceiving a lack of resources for T1DM care and insufficient personal time for self-care. In the prototype evaluation, both parents and providers found content to be relevant and provided feedback to guide the development of the full program. Parents of adolescents with T1DM and providers expressed a need for parents to have more support in transitioning diabetes care from parent to adolescent. eHealth programs offer an ideal way to address these needs and ultimately can be linked to electronic medical records improving quality and efficiency of health care in this population.
登录
查看更多内容
影响因子：
5.9
作者：
KOVACS, M;IYENGAR, S;MARSH, J
通讯作者：
MARSH, J
影响因子：
2
作者：
Grey, Margaret;Whittemore, Robin;Dziura, James
通讯作者：
Dziura, James
影响因子：
3.8
作者：
Bowes, Susan;Lowes, Lesley;Gregory, John W.
通讯作者：
Gregory, John W.
影响因子：
0.9
作者：
Jaser, Sarah S.;Whittemore, Robin;Grey, Margaret
通讯作者：
Grey, Margaret
影响因子：
16.2
作者：
Buckloh, Lisa M.;Lochrie, Amanda S.;Wysocki, Tim
通讯作者：
Wysocki, Tim