Delivering Personalized Recommendations to Support Caregivers of People Living With Dementia: Mixed Methods Study.
Delivering Personalized Recommendations to Support Caregivers of People Living With Dementia: Mixed Methods Study.
复制标题
提供个性化的建议，以支持痴呆症患者的照顾者：混合方法研究。
DOI：
10.2196/35847
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发表时间：
2022-05-03
期刊：
影响因子：
4.9
通讯作者：
Gaugler, Joseph E.
中科院分区：
文献类型：
--
作者：
Cha, Jinhee;Peterson, Colleen M.;Millenbah, Ashley N.;Louwagie, Katie;Baker, Zachary G.;Shah, Ayush;Jensen, Christine J.;Gaugler, Joseph E.
据估计，到2021年，620万年龄≥65岁的美国人患有阿尔茨海默氏症，到2060年，这一数字可能增加一倍以上，达到1380万。因此，公共卫生官员预计更需要阿尔茨海默病或相关痴呆症患者的护理人员，并为痴呆症患者及其护理人员提供支持资源。尽管对痴呆症照顾者支持服务的需求不断增长，但关于如何定制这些服务以最好地满足个人照顾者的不同需求，缺乏共识。为了填补这一空白，护理计划（CtP），一个基于网络的工具，为痴呆症患者的照顾者，开发了提供量身定制的支持建议，痴呆症照顾者。本研究的目的是正式探讨的可行性，可接受性和实用性CtP的20个家庭成员的人生活在一个卫生系统内超过1个月的时间内使用混合方法并行收敛设计。大西洋中部地区的一个中等规模的卫生系统被选为实施CtP的地点，其中20名照顾者是痴呆症患者的家庭成员。基于网络的CtP工具由护理人员使用，并由医疗保健专业人员（即高级护理导航员[SCN]）提供帮助。护理人员获得了一份21项审查清单，以评估与SCN审查CtP相关的障碍和促进因素。在21项审查清单之后，进行了半结构化电话访谈，其中包括18个开放式问题，重点是执行现金转拨方案的促进因素和障碍，以及对今后执行的建议。量化结果显示，85%（17/20）的照顾者认为CtP是有帮助的，90%（18/20）的照顾者会推荐CtP给类似情况的人。定性分析确定了4个主题的促进者和实施的障碍：照顾者的因素，SCN因素，CtP工具系统的因素，建议和资源的因素。CtP被认为不仅是可行的，而且是一个有价值的工具，为照顾者寻求资源，为自己和他们的人生活与痴呆症。长期评估结果旨在产生关于CtP如何融入照顾者的护理计划以及SCN如何在较长时间内为痴呆症患者的照顾者提供额外支持的结果。
Estimates suggest that 6.2 million Americans aged ≥65 years are living with Alzheimer dementia in 2021, and by 2060, this number could more than double to 13.8 million. As a result, public health officials anticipate a greater need for caregivers of persons with Alzheimer disease or related dementia and support resources for both people living with dementia and their caregivers. Despite the growing need for dementia caregiver support services, there is a lack of consensus regarding how to tailor these services to best meet the heterogeneous needs of individual caregivers. To fill this gap, Care to Plan (CtP), a web-based tool for caregivers of people living with dementia, was developed to provide tailored support recommendations to dementia caregivers. The aim of this study is to formally explore the feasibility, acceptability, and utility of CtP for 20 family members of people living with dementia within a health system over a 1-month time period using a mixed methods parallel convergent design. A moderately sized health system in the mid-Atlantic region was selected as the site for CtP implementation, where 20 caregivers who were family members of people living with dementia were enrolled. The web-based CtP tool was used by caregivers and facilitated by a health care professional (ie, a senior care navigator [SCN]). Caregivers were given a 21-item review checklist to assess barriers and facilitators associated with reviewing CtP with an SCN. Following the 21-item review checklist, semistructured telephone interviews, which included 18 open-ended questions, focused on the facilitators of and barriers to CtP implementation and recommendations for future implementation. Quantitative results suggested that 85% (17/20) of caregivers indicated that CtP was helpful and 90% (18/20) would recommend CtP to someone in a similar situation. The qualitative analysis identified 4 themes regarding facilitators of and barriers to implementation: caregiver factors, SCN factors, CtP tool system factors, and recommendations and resources factors. CtP was found to be not only feasible but also a valuable tool for caregivers seeking resources for themselves and their people living with dementia. Long-term evaluation findings aim to generate results on how CtP can be integrated into care plans for caregivers and how SCNs can provide additional support for caregivers of people living with dementia over an extended period.
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DOI：
10.1111/j.1532-5415.2009.02260.x
发表时间：
2009-06-01
影响因子：
6.3
作者：
Czaja, Sara J.;Gitlin, Laura N.;Gallagher-Thompson, Dolores
通讯作者：
Gallagher-Thompson, Dolores
DOI：
10.1007/s10072-020-05009-w
发表时间：
2021-04
期刊：
Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology
影响因子：
--
作者：
Arighi A;Fumagalli GG;Carandini T;Pietroboni AM;De Riz MA;Galimberti D;Scarpini E
通讯作者：
Scarpini E
影响因子：
--
作者：
Saunders B;Sim J;Kingstone T;Baker S;Waterfield J;Bartlam B;Burroughs H;Jinks C
通讯作者：
Jinks C
影响因子：
7.2
作者：
Czaja, Sara J.;Loewenstein, David;Perdomo, Dolores
通讯作者：
Perdomo, Dolores
影响因子：
5.7
作者：
Gitlin, LN;Winter, L;Hauck, WW
通讯作者：
Hauck, WW