Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease.
Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease.
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DOI：
10.1177/23743735221092488
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发表时间：
2022
影响因子：
1.5
通讯作者：
Kazak, Anne E.
中科院分区：
文献类型：
--
作者：
Sood, Erica;Gramszlo, Colette;Ramirez, Alejandra Perez;Braley, Katherine;Butler, Samantha C.;Davis, Jo Ann;Divanovic, Allison A.;Edwards, Lindsay A.;Kasparian, Nadine;Kelly, Sarah L.;Neely, Trent;Ortinau, Cynthia M.;Riegel, Erin;Shillingford, Amanda J.;Kazak, Anne E.
关键词：
来自不同利益攸关方的投入对于设计卫生保健干预措施的过程至关重要。本研究采用了一种新颖的混合方法，利益相关者参与的方法，共同设计了一种心理社会干预方法，用于期待患有先天性心脏病（CHD）婴儿的母亲及其伴侣，以促进家庭幸福。研究小组包括来自8个卫生系统的家长和临床医生。参与者是来自8个卫生系统的41名产前诊断为冠心病的儿童的不同父母。通过在线众包收集定性数据，通过电子调查收集定量数据，为干预协同设计提供信息。干预共同设计的阶段包括：(1)让利益相关者参与干预目标/结果的选择；（二）让利益相关者参与干预要素的选择；（III）获得利益相关者的投入，以提高干预的吸收/效用；（四）获取利益相关者在干预设计方面的意见；（五）获取利益相关者对结果度量选择的意见。参与研究的家长预期，最终的干预措施——HEARTPrep，对于期待患有冠心病的婴儿的父母来说是可接受的、有用的和可行的。这种干预共同设计模型可用于开发跨慢性疾病的卫生保健干预措施。
Input from diverse stakeholders is critical to the process of designing healthcare interventions. This study applied a novel mixed-methods, stakeholder-engaged approach to co-design a psychosocial intervention for mothers expecting a baby with congenital heart disease (CHD) and their partners to promote family wellbeing. The research team included parents and clinicians from 8 health systems. Participants were 41 diverse parents of children with prenatally diagnosed CHD across the 8 health systems. Qualitative data were collected through online crowdsourcing and quantitative data were collected through electronic surveys to inform intervention co-design. Phases of intervention co-design were: (I) Engage stakeholders in selection of intervention goals/outcomes; (II) Engage stakeholders in selection of intervention elements; (III) Obtain stakeholder input to increase intervention uptake/utility; (IV) Obtain stakeholder input on aspects of intervention design; and (V) Obtain stakeholder input on selection of outcome measures. Parent participants anticipated the resulting intervention, HEARTPrep, would be acceptable, useful, and feasible for parents expecting a baby with CHD. This model of intervention co-design could be used for the development of healthcare interventions across chronic diseases.
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影响因子：
5.9
作者：
Barrera, Manuel, Jr.;Castro, Felipe G.;Strycker, Lisa A.;Toobert, Deborah J.
通讯作者：
Toobert, Deborah J.
影响因子：
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通讯作者：
Scott, Shannon D
影响因子：
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通讯作者：
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影响因子：
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作者：
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通讯作者：
Smith, Danielle
影响因子：
4.5
作者：
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通讯作者：
Howell, Lori J.