Assessing Health-Related Quality of Life Among Survivors of Testicular Cancer: A Systematic Review.
Assessing Health-Related Quality of Life Among Survivors of Testicular Cancer: A Systematic Review.
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DOI：
10.1177/1557988320982184
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发表时间：
2021-01
期刊：
影响因子：
--
通讯作者：
Falk D
中科院分区：
文献类型：
--
作者：
Rovito MJ;Bruzzone A;Lee E;López Castillo H;Talton W;Taliaferro L;Falk D
本研究旨在确定目前为睾丸癌幸存者创建的健康相关生活质量（HRQoL）工具是否通过对产生睾丸癌HRQoL工具（第1阶段）和实际工具本身（第2阶段）的开创性研究的两步方法学批判收集最高质量的数据。本文的目的是介绍和讨论第1阶段。一项系统性综述旨在评估为创建用于测量睾丸癌HRQoL幸存者的工具而进行的研究的方法学质量。五名评审员使用横断面研究20项评估工具（AXIS）独立评估每项研究。还评估了评定者间一致性和Fleiss kappa，以确保报告评分的一致性。EORTC QLQ-TC 26和CAYA-T研究的评估结果分别为低（AXIS 52.5%; IRA 95%; κ = 0.779）和一般（AXIS 65%; IRA 80%; κ = 0.599）。对量表的关键评价包括三个核心AXIS领域内的问题。主要关注的问题涉及抽样方法和核心概念发展阶段缺乏质量组成部分。这两项被审查的开创性研究都对工具的质量提出了重大的方法论问题。接下来的步骤包括对EORTC QLQ TC-26和CAYA-T的心理测量特性进行广泛评估，以完成全面审查。准确和可靠的数据是必要的，以了解睾丸癌的幸存者HRQoL，并协助医疗保健专业人员和幸存者之间建立沟通的桥梁，以帮助改善患者的结果。
This study aimed to determine if the current health-related quality of life (HRQoL) tools created for survivors of testicular cancer are collecting the highest quality of data via a two-step methodological critique of both the seminal studies that produced a survivor of testicular cancer HRQoL tool (Phase 1) and the actual tool itself (Phase 2). It is the goal of this current article to present and discuss Phase 1. A systematic review aimed to assess the methodological quality of studies conducted to create instruments used to measure survivors of testicular cancer HRQoL. Five reviewers independently assessed each study with the 20-item Appraisal Tool for Cross-Sectional Studies (AXIS). Inter-rater agreement and Fleiss’ kappa was also assessed to ensure consistency in reported scores. Assessments for the EORTC QLQ-TC 26 and CAYA-T studies were low (AXIS 52.5%; IRA 95%; κ = 0.779) and fair (AXIS 65%; IRA 80%; κ = 0.599), respectively. Critical appraisal of the scales included issues within the three core AXIS domains. Primary concerns related to sampling methodology and the lack of a qualitative component of their core conceptual development phase. Both reviewed seminal studies have significant methodological concerns that question the tools’ quality. Next steps include extensive appraisal of the psychometric properties of the EORTC QLQ TC-26 and the CAYA-T to complete the comprehensive review. Accurate and reliable data are necessary to understand survivor of testicular cancer HRQoL and assist in building the bridge of communication between health care professionals and survivors to help to improve patient outcomes.
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作者：
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