"Treat us with dignity": a qualitative study of the experiences and recommendations of lesbian, gay, bisexual, transgender, and queer (LGBTQ) patients with cancer.
"Treat us with dignity": a qualitative study of the experiences and recommendations of lesbian, gay, bisexual, transgender, and queer (LGBTQ) patients with cancer.
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“有尊严地对待我们”：对女同性恋，同性恋，双性恋，变性者和酷儿（LGBTQ）癌症患者的经验和建议的定性研究。
DOI：
10.1007/s00520-018-4535-0
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发表时间：
2019-07
期刊：
影响因子：
--
通讯作者：
Norton SA
中科院分区：
文献类型：
--
作者：
Kamen CS;Alpert A;Margolies L;Griggs JJ;Darbes L;Smith-Stoner M;Lytle M;Poteat T;Scout N;Norton SA
尽管有迹象表明，女同性恋，男同性恋，双性恋，变性人和酷儿（LGBTQ）患者在寻求医疗保健时有独特的需求，但LGBTQ患者在癌症护理方面的经历尚未得到充分探讨。这项定性研究调查了LGBTQ癌症患者为改善癌症护理提供的建议。美国各地273名被诊断患有癌症的LGBTQ人完成了一项在线调查，其中包括开放式问题。利用对这些问题的回答，两名研究人员独立地进行了开放编码。协作生成代码本，数据独立编码。对代码进行聚类和细化，并对数据进行独立重新编码。出现了五个主题。LGBTQ癌症患者：（1）受到提供者的LGBTQ特定知识和技能，假设和虐待的影响;（2）基于临床接触的安全性协商身份披露;（3）基于多个交叉身份有不同的经历;（4）当他们的支持网络成员被包括在内时，得到更有效的照顾;（5）是自我倡导者，在面对发病率和边缘化时经历了变革。LGBTQ癌症幸存者报告了获得有效癌症治疗的挑战。为了解决这个问题，癌症护理提供者应该提供安全的临床接触，询问并专业地回应患者的身份和标识符，包括选定的支持人员，提供与患者性别认同相关的护理，并解决治疗对性行为的影响。培训提供者了解不同的LGBTQ社区，并承认LGBTQ癌症患者的优势，可以改善提供者/患者的关系。可以根据这些原则创建提供者培训。
Despite indications that lesbian, gay, bisexual, transgender, and queer (LGBTQ) patients have unique needs when seeking healthcare, the experiences of LGBTQ patients in the context of cancer care have not been fully explored. This qualitative study investigated recommendations offered by LGBTQ patients with cancer for improving cancer care. 273 LGBTQ people across the United States who had been diagnosed with cancer completed an online survey that included open-ended questions. Using responses to these questions, two researchers independently conducted open coding. A code book was generated collaboratively and the data were coded independently. Codes were clustered and refined and the data were independently re-coded. Five themes emerged. LGBTQ patients with cancer: (1) are affected by providers’ LGBTQ-specific knowledge and skills, assumptions, and mistreatment; (2) negotiate disclosure of identities based on safety of clinical encounters; (3) have differing experiences based on multiple intersecting identities; (4) receive more effective care when members of their support networks are included; and (5) are self-advocates and undergo transformative experiences in the face of morbidity and marginalization. LGBTQ cancer survivors report challenges accessing competent cancer treatment. To address this, cancer care providers should provide safe clinical encounters, inquire about and respond professionally to patients’ identities and identifiers, include chosen support people, provide care relevant to patients’ gender identities, and address treatments’ effects on sexuality. Training providers about diverse LGBTQ communities and acknowledging the strengths of LGBTQ patients with cancer may improve provider/patient relationships. Provider training could be created based on these principles.
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影响因子：
4.8
作者：
Kamen C;Palesh O;Gerry AA;Andrykowski MA;Heckler C;Mohile S;Morrow GR;Bowen D;Mustian K
通讯作者：
Mustian K
影响因子：
4.4
作者：
Conroy AA;Gamarel KE;Neilands TB;Dilworth SE;Darbes LA;Johnson MO
通讯作者：
Johnson MO
影响因子：
2.6
作者：
Alpert, Alison B.;CichoskiKelly, Eileen M.;Fox, Aaron D.
通讯作者：
Fox, Aaron D.
影响因子：
4.8
作者：
Macapagal, Kathryn;Bhatia, Ramona;Greene, George J.
通讯作者：
Greene, George J.
影响因子：
4.7
作者：
Boehmer, U;Freund, KM;Linde, R
通讯作者：
Linde, R