Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments.
Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments.
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DOI：
10.3389/fnhum.2021.689683
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发表时间：
2021
影响因子：
2.9
通讯作者：
Williams C
中科院分区：
文献类型：
--
作者：
Goodenough T;Pease A;Williams C
脑性视觉障碍（CVI）是一个总称，包括视觉敏锐度、对比敏感度或色彩异常；本篇;视野和视觉输入的有意识和无意识的过滤或处理。患有CVI的儿童在从婴儿期到成年期的发展过程中有特殊的需求和问题，这可能会影响他们的健康。最近的研究表明，患有CVI的生活是复杂的，但关于CVI对家庭日常生活的全面影响的信息仍然有限。这里报道的定性访谈探讨了家庭的经历，以发现CVI对日常生活各个方面的影响。在2018年1月至2019年2月期间，家长和孩子（6-18岁）被邀请参加面对面、电话或视频访谈。主题涵盖了与CVI一起生活的日常实践，重点是挑战以及在学校和家庭中行之有效的方法。访谈录音，并进行专题分析，以寻找数据中的模式。20个家庭参加了采访，这些家庭中的8名儿童/年轻人提供了他们自己的采访。从访谈中发展出四个主题：(1)评估和理解CVI的含义；(2)教育；(3)家庭生活；(4)心理健康和生活质量。这些访谈提供了宝贵的见解，了解了患有CVI的生活的影响，并强调需要在卫生和教育机构的专业人员中提高对这种情况的认识。
Cerebral Visual Impairment (CVI) is an umbrella term which includes abnormalities in visual acuity, or contrast sensitivity or colour; ocular motility; visual field and the conscious and unconscious filtering or processing of visual input. Children with CVI have specific needs and problems relating to their development from infancy to adulthood which can impact on their wellbeing. Recent research indicates the complexities of living with CVI but there remains limited information of the full impact of CVI on families’ everyday lives. The qualitative interviews reported here explored families’ experiences to discover the impact of CVI on all aspects of everyday life. Parents and children (aged 6–18) were invited to participate in semi-structured interviews, either face to face, by phone or video call between January 2018 and February 2019. Topics covered everyday practicalities of living with CVI, focusing on challenges and what worked well at school and home. Interviews were audio-recorded and subject to thematic analysis to look for patterns across the data. Twenty families took part in interviews, with eight children/young people within those families contributing interviews of their own. Four themes were developed from the interviews: (1) Assessment and understanding implications of CVI, (2) Education, (3) Family life, (4) Psychological wellbeing and quality of life. The interviews provide valuable insights into the impact of living with CVI and highlight the need for more awareness of the condition among professionals in both health and education settings.
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影响因子：
36.4
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通讯作者：
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