Public awareness and use of direct-to-consumer personal genomic tests from four state population-based surveys, and implications for clinical and public health practice.
Public awareness and use of direct-to-consumer personal genomic tests from four state population-based surveys, and implications for clinical and public health practice.
复制标题
DOI：
10.1038/gim.2012.67
复制
发表时间：
2012-10
期刊：
影响因子：
--
通讯作者：
Khoury MJ
中科院分区：
文献类型：
--
作者：
Kolor K;Duquette D;Zlot A;Foland J;Anderson B;Giles R;Wrathall J;Khoury MJ
直接面向消费者的个人基因组测试广泛可用，但基于人群的数据在美国普通公众中对这些测试的了解和使用有限。我们使用2009年行为风险因素监测系统评估了康涅狄格州、密歇根州、俄勒冈州和犹他州对直接面向消费者的个人基因组测试的认识和使用，并将州政府的结果与2008年全国HealthStyles调查结果进行了比较。俄勒冈州的知晓率最高(29.1%)，密歇根州最低(15.8%)。在所有州和全国范围内，与意识相关的因素是更高的教育程度、更高的收入和不断增长的年龄，75岁或以上的人除外。只有不到1%的受访者使用过这些测试，大约一半到四分之三的受访者与医疗保健提供者分享了测试结果。与2006年进行的一项相关研究相比，这项研究对直接面向消费者的基因测试的认识更高，而两项研究的使用率同样较低。报告使用这些测试的少数受访者经常报告与他们的医疗保健提供者分享他们的结果，这表明医疗保健提供者有一个重要的机会来提供有关这些测试的患者教育。公共卫生机构在直接面向消费者的基因组测试的监测、教育和政策制定方面发挥着重要作用。
Direct-to-consumer personal genomic tests are widely available, but population-based data are limited on awareness and use of these tests among the general public in the United States. We assessed awareness and use of direct-to-consumer personal genomic tests in Connecticut, Michigan, Oregon, and Utah using the 2009 Behavioral Risk Factor Surveillance System and compared the state results to the 2008 national HealthStyles survey results. Awareness was the highest in Oregon (29.1%) and the lowest in Michigan (15.8%). Factors associated with awareness across all states and nationally were higher education, higher income, and increasing age, except among those 75 years or older. Less than 1% of respondents had used the tests, with about one-half to three-quarters of those sharing the results with a health-care provider. Awareness of direct-to-consumer genetic tests is greater in this study as compared with a related study conducted in 2006, whereas use is similarly low in both studies. The few respondents who reported using the tests often reported sharing their results with their health-care provider, indicating an important opportunity for health-care providers to offer patient education regarding these tests. Public health agencies have important roles in surveillance, education, and policy development on direct-to-consumer genomic tests.
登录
查看更多内容
影响因子：
5.5
作者：
Khoury MJ;Bowen MS;Burke W;Coates RJ;Dowling NF;Evans JP;Reyes M;St Pierre J
通讯作者：
St Pierre J
影响因子：
1.9
作者：
Langford, Aisha T.;Resnicow, Ken;Zikmund-Fisher, Brian J.
通讯作者：
Zikmund-Fisher, Brian J.
影响因子：
3.7
作者：
Cherkas, Lynn F.;Harris, Juliette M.;Prainsack, Barbara
通讯作者：
Prainsack, Barbara
影响因子：
5.7
作者：
Haga, Susanne B.;Carrig, Madeline M.;Cho, Alex
通讯作者：
Cho, Alex
影响因子：
8.8
作者：
Lachance, Christina R.;Erby, Lori A. H.;Kaphingst, Kimberly A.
通讯作者：
Kaphingst, Kimberly A.