How do women with interstitial cystitis/bladder pain syndrome make treatment choices?
How do women with interstitial cystitis/bladder pain syndrome make treatment choices?
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DOI：
10.1007/s00192-021-04994-6
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发表时间：
2022-03
影响因子：
1.8
通讯作者：
Arya L
中科院分区：
文献类型：
--
作者：
Hassani D;Flick L;Sangha H;Brown LA;Andy U;Arya L
关于患者在选择间质性膀胱炎/膀胱疼痛综合征（IC/BPS）治疗策略时如何权衡各种因素的数据相对缺乏。我们的目的是描述患者的经验与他们目前和以前的治疗，并讨论他们考虑的因素时，选择治疗。21名患有IC/BPS的女性参加了由心理学家主持的五个焦点小组。焦点小组一直进行到主题饱和为止。小组讨论由两位审稿人进行转录和独立编码。新兴主题和概念是使用扎根理论方法确定的。使用有效的问卷收集有关药物的症状和信念的数据：间质性膀胱炎症状和问题指数（ICSI和ICPI）和药物信念问卷特异性（BMQ-S）。参与者的年龄中位数为42岁，并且都接受过大学教育。ICSI评分中位数（范围）为12 (4,20)，ICPI评分中位数（范围）为10(3,16)，表明症状负担中度。大多数患者只尝试过一线或二线治疗。BMQ-S中位数为2分，表明对药物的态度中立。确定了几个主题。患者表达了对使用结构化护理计划自我管理症状的兴趣，该计划包含有指导的自我护理实践和可虚拟提供的护理。患者希望通过减少处方药物和避免手术来减少治疗副作用。最后，患者对替代疗法有相当大的兴趣；然而，他们希望这些治疗是基于证据的。患有IC/BPS的妇女对通过远程平台教授自我保健实践和提供替代治疗的指导项目有浓厚的兴趣。
There is a relative lack of data regarding how patients weigh various factors when choosing a treatment strategy for interstitial cystitis/bladder pain syndrome (IC/BPS). Our aim is to describe patient experience with their current and prior treatments and discuss factors they consider when choosing a treatment. Twenty-one women with IC/BPS participated in five focus groups moderated by a psychologist. Focus groups were conducted until thematic saturation was reached. Group discussions were transcribed and independently coded by two reviewers. Emergent themes and concepts were identified using grounded theory methodology. Data on symptoms and beliefs regarding medications were collected using validated questionnaires: Interstitial Cystitis Symptom and Problem Index (ICSI and ICPI) and Beliefs in Medications Questionnaire-Specific (BMQ-S). The median age of participants was 42 years, and all had some college education. Median score (range) for the ICSI was 12 (4, 20) and for the ICPI was 10 (3, 16), indicating moderate symptom burden. Most patients had tried only first- or second-line treatments. The median BMQ-S score was 2, indicating a neutral attitude toward medication. Several themes were identified. Patients expressed interest in self-management of symptoms using a structured care plan that incorporates guided self-care practices and care that can be delivered virtually. Patients desired to minimize treatment side effects by reducing prescription medications and avoiding surgical procedures. Finally, patients had considerable interest in alternative treatments; however, they wanted these treatments to be evidence-based. Women with IC/BPS have a strong interest in guided programs that teach self-care practices and deliver alternative treatments through remote platforms.
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影响因子：
7.4
作者：
Carpenter JK;Andrews LA;Witcraft SM;Powers MB;Smits JAJ;Hofmann SG
通讯作者：
Hofmann SG
影响因子：
4.7
作者：
Horne, R;Weinman, J
通讯作者：
Weinman, J
DOI：
10.1001/jama.2016.2323
发表时间：
2016-03-22
期刊：
JAMA
影响因子：
--
作者：
Cherkin DC;Sherman KJ;Balderson BH;Cook AJ;Anderson ML;Hawkes RJ;Hansen KE;Turner JA
通讯作者：
Turner JA
影响因子：
2.1
作者：
Bosch, Philip C.
通讯作者：
Bosch, Philip C.
影响因子：
3.8
作者：
Lorig, KR;Holman, HR
通讯作者：
Holman, HR