Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials with American Indian Communities.

Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials with American Indian Communities.
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DOI:
10.5888/pcd17.200099
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发表时间:
2020-11-12
影响因子:
5.5
通讯作者:
Adams A
Adams A
中科院分区:
医学3区
文献类型:
--
作者:
Rink E;Knight K;Ellis C;McCormick A;FireMoon P;Held S;Webber E;Adams A

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学术文献表明,在设计、实施和评估与美国印第安人社区的随机对照试验(RCT)时,需要更多地整合土著和殖民地研究系统。在这篇文章中,我们描述了利用基于社区的参与性研究(CBPR)的原则和实践,与部落国家实施区域合作研究的方法。我们使用多案例研究设计来检查部落民族和研究人员如何合作开发、实施和评估CBPR随机对照试验。在现有的部落-学术伙伴关系中提出了讨论问题,以确定3个案例研究的认识论、方法论和分析优势和挑战。我们确定了共性,这些共性是CBPR与部落国家区域工作队取得成功的基础。长期的社区-研究人员关系对随机对照试验的制定、实施和评估至关重要,尽管3个CBPR随机对照试验的成功因素是不同的,并取决于每项试验的背景。尊重兼顾土著知识和殖民科学的不同知识体系的重要性也是区域技术合作取得成功的原因。使用CBPR区域技术研究的部落-学术伙伴关系必须包括:1)建立值得信赖的CBPR伙伴关系,并在与部落国家开展区域技术研究之前获得部落的批准;2)平衡部落社区的利益和愿望与区域技术研究的殖民科学严谨性;3)使用包括部落社区对成功的概念以及在标准殖民科学研究实践中发现的结果来衡量CBPR区域技术研究的成功。
Academic literature indicates a need for more integration of Indigenous and colonial research systems in the design, implementation, and evaluation of randomized controlled trials (RCTs) with American Indian communities. In this article, we describe ways to implement RCTs with Tribal Nations using community-based participatory research (CBPR) principles and practices. We used a multiple case study research design to examine how Tribal Nations and researchers collaborated to develop, implement, and evaluate CBPR RCTs. Discussion questions within existing tribal–academic partnerships were developed to identify the epistemologic, methodologic, and analytic strengths and challenges of 3 case studies. We identified commonalities that were foundational to the success of CBPR RCTs with Tribal Nations. Long-standing community–researcher relationships were critical to development, implementation, and evaluation of RCTs, although what constituted success in the 3 CBPR RCTs was diverse and dependent on the context of each trial. Respect for the importance of diverse knowledge systems that account for both Indigenous knowledge and colonial science also contributed to the success of the RCTs. Tribal–academic partnerships using CBPR RCTs must include 1) establishing trusted CBPR partnerships and receiving tribal approval before embarking on RCTs with Tribal Nations; 2) balancing tribal community interests and desires with the colonial scientific rigor of RCTs; and 3) using outcomes that include tribal community concepts of success as well as outcomes found in standard colonial scientific research practices to measure the success of the CBPR RCTs.
基于社区的参与性研究:从儿童环境健康和疾病预防研究中心汲取的教训。
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