Financial and employment impact of intellectual disability on families of children with autism.
Financial and employment impact of intellectual disability on families of children with autism.
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智力残疾对自闭症儿童家庭的财务和就业影响。
DOI：
10.1037/fsh0000102
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发表时间：
2015-03
影响因子：
1.3
通讯作者：
Kuo, Dennis Z.
中科院分区：
文献类型：
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作者：
Saunders, Barbara S.;Tilford, J. Mick;Fussell, Jill J.;Schulz, Eldon G.;Casey, Patrick H.;Kuo, Dennis Z.
自闭症谱系障碍 (ASD) 儿童的家庭由于孩子需要大量服务而承受着巨大的经济和就业负担。该研究的目的是描述除 ASD 之外对智力障碍 (ID) 儿童家庭的其他影响。该研究是对 2009-2010 年全国有特殊医疗保健需求儿童调查的二次数据分析。当被问及孩子是否患有 ASD 或 ID 时，父母回答“是”的孩子被分类为仅患有 ASD（未加权 n=2406）、仅患有 ID（未加权 n=1363）或同时患有 ASD/ID（未加权 n=620）。使用自闭症谱系障碍 (ASD) 作为参考组，双变量和多变量分析比较了家庭经济和照顾者负担的研究结果。所有分析均使用个人水平估计进行加权。在患有自闭症谱系障碍 (ASD) 的儿童中，24% 还患有智力障碍 (ID)。超过一半患有 ASD/ID 儿童的照顾者表示经济困难 (52%)，并且不得不停止工作来照顾孩子 (51%)。与单独的自闭症谱系障碍相比，同时患有自闭症谱系障碍和智力障碍的儿童的照顾者更有可能报告经济困难（aOR 1.65，95% CI 1.10-2.46）、减少工作时间（aOR 1.43，95% CI 0.98-2.08）和停止工作（aOR 2.32，95% CI 1.57-3.43）。仅患有自闭症谱系障碍 (ASD) 儿童和仅患有智力障碍 (ID) 儿童的照顾者之间没有发现差异。我们的结论是，除了自闭症谱系障碍之外，患有智力障碍可能会对家庭经济和就业负担产生更大的负面影响。除了自闭症谱系障碍之外，识别智力障碍对于调整临床方法和为家庭提供充分支持也很重要。
Families of children with Autism Spectrum Disorder (ASD) endure significant financial and employment burden due to their children's numerous needed services. The study objective is to describe additional impact on families of children with intellectual disability (ID) in addition to ASD. The study is a secondary data analysis of the 2009-2010 National Survey of Children with Special Health Care Needs. Children whose parents answered “yes” when asked if their child had ASD or ID were classified as having ASD alone (unweighted n=2406), ID alone (unweighted n=1363), or both ASD/ID (unweighted n=620). Bivariate and multivariate analyses compared study outcomes of family financial and caregiver burden using ASD as the reference group. All analyses were weighted using person-level estimates. Of children with ASD, 24% also had ID. Over half of caregivers of children with ASD/ID reported financial difficulty (52%) and having to stop work to care for their child (51%). Compared to ASD alone, caregivers of children with both ASD/ID were more likely to report financial difficulty (aOR 1.65, 95% CI 1.10-2.46), cutting work hours (aOR 1.43, 95% CI .98-2.08), and stop working (aOR 2.32, 95% CI 1.57-3.43). No differences were found between caregivers of children with ASD only and ID only. We conclude that having ID in addition to ASD may be associated with greater negative impact on family financial and employment burden. Recognition of ID in addition to ASD is important to tailor the clinical approach and sufficiently support families.
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影响因子：
--
作者：
Kuo, Dennis Z.;Cohen, Eyal;Agrawal, Rishi;Berry, Jay G.;Casey, Patrick H.
通讯作者：
Casey, Patrick H.
影响因子：
8
作者：
Montes, Guillermo;Halterman, Jill S.
通讯作者：
Halterman, Jill S.
影响因子：
3.1
作者：
Irazabal, M.;Marsa, F.;Ochoa, S.
通讯作者：
Ochoa, S.
影响因子：
8
作者：
Mandell, DS;Novak, MM;Zubritsky, CD
通讯作者：
Zubritsky, CD
影响因子：
2.2
作者：
Lach, Lucyna M.;Kohen, Dafna E.;Rosenbaum, Peter L.
通讯作者：
Rosenbaum, Peter L.