Is It Worth It? Benefits in Research With Adults With Intellectual Disability.
Is It Worth It? Benefits in Research With Adults With Intellectual Disability.
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值得吗？与智障成年人的研究有益。
DOI：
10.1352/1934-9556-54.6.440
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发表时间：
2016-12
影响因子：
1.8
通讯作者：
Project ETHICS Expert Panel
中科院分区：
文献类型：
--
作者：
McDonald KE;Conroy NE;Olick RS;Project ETHICS Expert Panel
将智障成年人纳入研究可促进参与者的直接利益和更大的社会效益。利益相关者可能对什么是好处以及它们的重要性有不同的看法。我们比较了智障成年人、家人和朋友、服务提供者、研究人员和机构审查委员会成员对研究益处的看法。我们发现，智力残疾的成年人重视直接和间接的研究利益，并希望参与提供他们的研究。其他利益相关者通常认为直接利益的价值较小，并预测与智力残疾的成年人相比，他们对参与研究的兴趣更弱。为了促进尊重的研究参与，研究政策和实践应纳入智障成年人的观点。
Including adults with intellectual disability in research promotes direct benefits to participants and larger societal benefits. Stakeholders may have different views of what count as benefits, and their importance. We compared views on benefits in research with adults with intellectual disability among adults with intellectual disability, family and friends, service providers, researchers, and Institutional Review Board members. We found that adults with intellectual disability value direct and indirect research benefits, and want to participate in research that offers them. Other stakeholders generally see less value in direct benefits and predict more tempered interest in research participation as compared to adults with intellectual disability. To promote respectful research participation, research policy and practice should incorporate the views of adults with intellectual disability.
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影响因子：
6.6
作者：
Dunn, Laura B.;Kim, Daniel S.;Palmer, Barton W.
通讯作者：
Palmer, Barton W.
影响因子：
3.6
作者：
Feldman, M. A.;Bosett, J.;Burnham-Riosa, P.
通讯作者：
Burnham-Riosa, P.
影响因子：
7.3
作者：
Warner, TD;Roberts, LW;Nguyen, K
通讯作者：
Nguyen, K
DOI：
10.1525/jer.2011.6.1.63
发表时间：
2011-03-01
影响因子：
1.3
作者：
Rubright, Jonathan D.;Cary, Mark S.;Kim, Scott Y. H.
通讯作者：
Kim, Scott Y. H.
DOI：
10.1352/1944-7558-117.4.263
发表时间：
2012-07-01
影响因子：
2.1
作者：
McDonald, Katherine Elizabeth
通讯作者：
McDonald, Katherine Elizabeth